Table 3.
Distribution and variation of QoL of individuals with CP from childhood to young adulthood: SPARCLE cohort—France, Germany, Italy, and Sweden.
| All participants (n = 164) | Participants in all waves (n = 130) | |||
|---|---|---|---|---|
| Psychological well-being | Social relationships | Psychological well-being | Social relationships | |
| Childhood | ||||
| n | 142 | 140 | 123 | 119 |
| Mean (SD) | 73.9 (18.1) | 50.2 (26.7) | 74.2 (18.6) | 51.3 (26.2) |
| [Min–max] | [20.0–100.0] | [0.0–100.0] | [20.0–100.0] | [0.0–100.0] |
| Adolescence | ||||
| n | 144 | 143 | 123 | 119 |
| Mean (SD) | 71.1 (20.7) | 53.5 (27.5) | 73.5 (19.2) | 56.7 (26.7) |
| [Min–max] | [0.0–100.0] | [0.0–100.0] | [16.7–100.0] | [0.0–100.0] |
| Young adulthood | ||||
| n | 155 | 160 | 123 | 119 |
| Mean (SD) | 61.7 (13.2) | 66.7 (20.8) | 63.1 (12.5) | 68.3 (19.5) |
| [Min–max] | [25.0–87.5] | [0.0–100.0] | [25.0–87.5] | [8.3–100.0] |
| Change in QoL scores* | ||||
| β | −0.78 | 1.24 | −0.81 | 1.12 |
| [95% CI] | [−0.99 to −0.56]† | [0.92 to 1.55]† | [−1.04 to −0.58]† | [0.79 to 1.46]† |
QoL, quality of life; CP, cerebral palsy.
*
β coefficients and 95% CI estimated by generalized linear mixed-effect model with random intercept adjusted for region, sex, and parental education level. β coefficients show the average difference in quality of life by 1 year of age.
†
95% CI excluding zero.