TABLE 1.

Pediatric and adult patient populations and outcomes tested remotely across expert neuromuscular centers in response to the COVID-19 pandemic.

Patient populations
Clinic		Research
−SMA	−LAMA2	−DMD
−LGMD	−FSHD	−LGMD
−DMD/BMD	−Myotonic dystrophies	−SMARD1
−CMD	−CMS	−SMA
−Congenital myopathies	−VCP	−VCP
−HMERF	−CMT
−Pompe disease	−Myofibrillar myopathies

Clinical Outcome Assessments
Clinic		Research
−Patient reported outcomes	−RHS/HFMSE	−NSAA	−9HPT
−NSAA/NSAD	−CHOP Intend *	−NSAD	− Box and Blocks
−Neuromuscular GRO	−RULM ^	−TUG	− RHS/HFMSE
−Bayley	−EK2	−PUL	− Bayley (gross motor)
−MFM* ^	−Brooke/PUL entry	−Brooke	− Motor milestones
−TFT ^	−Vignos	−Neuromuscular GRO	− Spirometry
		−TFT	− CHOP Intend *

^*Indicates the assessment was attempted but needed to be modified or performed partially when conducted remotely due to safety and/or handling expertise required. ^ Indicates the assessment can be feasible with standardized equipment and/or sufficient space within home which may not be available for some visits.