TABLE 2.

Matrix of patient populations and outcomes tested remotely. Refer to Table 1 for overview of which outcomes were administered clinically or for research purposes. Outcomes that require standardized equipment were typically only completed for research purposes where equipment could be supplied. For clinical purposes, modified versions of some scales ( ^ ) may have been attempted remotely if required for treatment authorizations in some patient cohorts and regions.

^*Indicates the assessment was attempted but needed to be modified or performed partially when conducted remotely due to safety and/or handling expertise required. ^ Indicates the assessment can be feasible with standardized equipment and/or sufficient space within home which may not be available for some visits. DMD: Duchenne muscular dystrophy; BMD: Becker muscular dystrophy; SMA: spinal muscular atrophy; LGMD: limb girdle muscular dystrophy; CMD: Congenital muscular dystrophies; HMERF: Hereditary myopathy with early respiratory failure; LAMA2: laminin-2 related muscular dystrophy; FSHD: facioscapulohumeral dystrophy; CMS: congenital myasthenic syndromes; SMARD1: SMA with respiratory distress; POM: Pompe disease; MYO: Myotonic dystrophy; VCP: valosin containing protein associated multisystem proteinopathy; NSAA: North Star Ambulatory Assessment; NSAD: North Star Assessment for limb girdle-type dystrophies; TFT: Timed functional tests including rise from floor, 10 m walk/run; Neuromuscular GRO: Neuromuscular Gross Motor Outcome; Bayley: Bayley scales of infant and toddler development–gross motor subtest; MFM: Motor Function Measure; RHS: Revised Hammersmith Scale; HFMSE: Hammersmith Functional Motor Scales Expanded; CHOP Intend: Children’s Hospital of Philadelphia Infant Test of Neuromuscular Disorders; RULM: Revised Upper Limb Module; EK2: Egen Klassifikation two; Brooke: Brooke Upper Extremity Functional Rating Scale; PUL: Performance of Upper Limb; Vignos: Vignos Lower Extremity Rating Scale; TUG: Timed Up and Go; PROM: Patient report outcome measure; 9HPT: Nine hole peg test.