When thinking about the level of distress this may cause, how serious a problem is it?
1. I find it difficult to accept having RA	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
2. I feel that having RA has a big impact on me	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
3. I feel worried that having RA has a big impact on my family or friends	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
4. I feel worried that I might have to depend on family or friends in the future	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
5. I find it difficult to accept the impact my RA might have on my ability to work	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
6. I am concerned that my disease might not be well controlled	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
7. I worry about the long-term impact of my disease	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
8. I worry about having other long-term conditions in addition to my RA	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
9. I am worried about the impact of developing infections due to my low immunity	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
10. I am concerned that medication will not stop the disease progression (including joint damage)	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
11. I feel frustrated that there is no cure for RA	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
12. I feel distressed because of my RA pain	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
13. I feel frustrated because my RA symptoms limit my mobility	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
14. I feel irritated because my RA symptoms disrupt my sleep	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
15. I feel frustrated because of my fatigue associated with my disease	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
16. I feel frustrated because sleep does not relieve the fatigue I feel with my disease	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
17. I feel frustrated that my RA stops me doing what I want to do	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
18. I feel my energy is drained living with RA	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
19. I feel frustrated that I cannot do everything I used to be able to do/enjoy	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
20. I feel frustrated that I cannot do everything I would like to be able to do	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
21. I feel frustrated that I cannot be as physically active as other people my age	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
22. I feel distressed trying to manage my weight with having RA	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
23. I find it frustrating that people do not understand RA	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
24. I am concerned my RA will have an impact on my ability to look after others	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
25. I am frustrated that I do not have enough support to enable me to do a/my job	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
26. I feel a loss of purpose because I cannot work/work to the extent I used to due to my RA	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
27. I worry that having RA may affect my finances	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
28. I feel deflated about different RA treatments not working effectively for me	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
29. I am frustrated about the side effects of my treatment	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
30. I feel distressed with the regimen of collecting and managing my medication	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
31. I feel frustrated with the difficulty in accessing help from healthcare professionals e.g. accessing nurse help line	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
32. I am frustrated when clinic appointments are cancelled or rescheduled at short notice	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
33. I feel frustrated at the lack of continuity of my care e.g. seeing several different consultants	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
34. I worry that attending so many appointments for my RA impacts on my other commitments	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
35. I feel frustrated when healthcare professionals do not take enough time to assess my condition	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
36. I feel frustrated when healthcare professionals do not adequately explain test results or treatments to me	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
37. I feel frustrated that healthcare professionals do not ask how I am coping living with RA	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
38. I feel frustrated that I am not adequately supported or listened to by healthcare professionals	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem
39. I feel overwhelmed living with RA	Not a problem	Slight problem	Moderate problem	Serious problem	Very serious problem