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Question #1: Can you tell me a little about yourself? For example, anything you would like to share about your work, family, or the area you currently live in?
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Question #2: Thinking back to before you were diagnosed with Multiple Myeloma, were you having any signs or symptoms? Can you describe what you were you experiencing, what made you see a doctor initially?
Possible Probes:
How long were those symptoms occurring?
What did you think was going on?
Who did you bring these up with, if anyone?
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Question #3: Would you tell me about the process you went through as you were being diagnosed? What steps did you go through and with whom? (I’m asking right now about diagnosis. I’ll ask you about treatment options next)
Possible Probes:
When were you diagnosed?
What type of medical provider diagnosed you? What was your relationship with that provider (doctor you already knew, someone you were referred to, first time you met her?)
Was a specialist involved, and how long did it take to see a specialist (i.e., referred)?
Were family and/or friends involved with any of these steps?
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Question #4: Now, I’d like to talk about treatment options and plans. Can you describe how those discussions about treatment options went? What steps did you go through, what kind of information, and with whom?
Possible Probes:
Where are you in your course of treatment? How many visits have you had with your oncologist? How often are you seeing them? Are there other doctors you are seeing related to your myeloma?
Who was involved, doctors, nurses, other clinicians?
What kind of information did you receive? Pamphlets, websites, verbal, etc?
Were family and/or friends involved with any of these steps?
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Question #5: When you had questions or concerns as you were learning about your diagnosis and treatment options, how did you get those questions answered?
Possible Probes:
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Question #6: Did you need any information beyond what your healthcare team gave you either about diagnosis or treatment? If so, what kinds of information or education did you yourself look for about the diagnosis or treatment?
Possible Probes:
What kind of information were you looking for? Can you give me an example of something you looked for yourself?
What sources of information did you use to educate yourself? (i.e., websites, library/journals, doctors, social media, support groups, and family members)
Did your method of education change over time?
What was the most useful information? Did any of the information you looked at change your decisions?
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Question #7: Did your family and friends participate in making your decisions about treatment? If so, can you tell me about what role they played?
Possible Probes:
Who was involved and how?
Did they attend visits, talk on the phone, find educational resources, or other activities?
What did they discuss with you, your healthcare team, among themselves?
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Question #8: What were the important considerations in deciding which treatment you would undergo?
Possible Probes:
What made you choose your option (were there trade‐offs that you had to consider)?
Who do you think these considerations were important to, you, family, clinicians, etc.?
What made you feel you could trust your clinician?
Did you seek a second opinion? Why or why not?
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Question #9: What do you think are important factors for other patients to consider when making a treatment choice?
Possible Probe:
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Question #10: What is your understanding of the current status of your multiple myeloma?
Possible Probes:
How do you and your doctor communicate about your status?
Do you and your doctor talk about monitoring and future expectations (if Y/ at what point did these discussions begin)?
Is there anything that you’re tracking on your own (symptoms from tx, markers)?
What sources of information did you use to help monitor or track your multiple myeloma and treatment symptoms? (i.e., websites, library/journals, doctors, social media, support groups, and family members)
Did your method of monitoring/tracking change over time?
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Question #11: Is there anything else you would like to share that we haven’t already covered?
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