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. Author manuscript; available in PMC: 2021 Nov 22.
Published in final edited form as: J Genet Couns. 2019 Sep 25;29(1):18–24. doi: 10.1002/jgc4.1174

Table 2:

Reasons to decline cancer genetic testing, expressed by more than one person.

Domain Instance (n= 21) Exemplary quotes
Personal emotions 8 “If you find out that you’re BRCA positive, that would be devastating” (306)
“I wasn’t feeling able to do it.” (310)
“I just didn’t want another whammy on me at the time of going through already being diagnosed and going through treatment.” (302)
Family’s emotions 6 “I didn’t want to hear that it was my fault that my son had [the disease.]” (502)
“I don’t want to upset [my relative].” (217)
“For people that know that they have [the disease], we found out there was a high risk of suicide with it. […] I didn’t want my children to have to deal with that, and so that was the decision we made, was to not have the testing.” (202)
Insurance 6 “Of course they’re not going to want to cover somebody that’s due to have different kinds of cancers. [My emotional state] was the main concern at first, but the second concern would’ve been the insurance companies.” (507)
“I decided to get life insurance before I was tested … because I wanted to make sure I could get it if I had the gene.” (503)
Lack of utility 4 “The testing would show inconclusive results because I’m Asian. There are not as many patients who are Asian who took it.” (306)
“We had an unusual amount of cancer in my family, but it didn’t seem to be hereditary.” (406)
“Since none of my family, my mom, no one had it, so I was like, maybe […] it was not genetic. That’s why I didn’t go earlier to the doctor.” (304)