Table 3.

Change of caregiving task questionnaire results before and after transition.

	Before (n = 13) Mean ± SD	After (n = 12) Mean ± SD	p
Shopping	3.1 ± 2.2	0.8 ± 1.0	0.004 *
Housekeeping (e.g., cleaning, ironing)	4.1 ± 1.8	1.6 ± 2.2	0.007 *
Preparing/serving of meals	5.2 ± 2.5	1 ± 1.2	<0.001 *
General body care (e.g., dressing, toilet, showering)	5.8 ± 2.8	0.8 ± 1.1	<0.001 *
Mobilizing/positioning the patient	4.3 ± 3.1	0.5 ± 1.0	0.004 *
Helping during the night	5.5 ± 4.0	0 ± 0	<0.001 *
Alleviating symptoms (e.g., on-demand medication)	3.5 ± 2.3	0.2 ± 0.6	<0.001 *
Providing social/emotional support	4.2 ± 2.8	3.7 ± 2.3	0.21
Collecting information	4 ± 3.0	2.1 ± 2.2	<0.001 *
Taking part in decision-making	4.9 ± 2.7	2.6 ± 2.1	0.009 *
Administrativ741e tasks (e.g., health insurance)	4.2 ± 3.1	2.1 ± 1.2	0.006 *
Taking/accompanying the patient, e.g., to the doctor/therapies	6 ± 2.7	1.5 ± 2.2	0.001 *
Other	0.7 ± 1.7	1.6 ± 1.8	0.21

Hence, one caregiver did not complete the caregiver tasks questionnaire at t0 and two caregivers at t1. Abbreviations: SD, standard deviation; *, p ≤ 0.05.