Table 3.

Pathways to psychosocial care

Sub-category	Description
Health care providers	General practitioners or hospitals can refer parents to suitable services
Self-research	Internet searches are an increasingly important pathway
Educational setting	Through regular contact with children and families, the need for psychosocial care often becomes apparent at an early stage
Social services	With rich networks, social services can be an important access point
Self-help groups/patient organizations	Exchange with other families helps to obtain an overview of available services