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. 2021 Nov 27;16:497. doi: 10.1186/s13023-021-02127-2

Table 7.

Reasons why psychosocial care is needed

Sub-category Description
Family matters For all family members, situations requiring psychosocial support can arise for several reasons
Information and organizational support Disease management, the organization of daily life, advice on legal and administrative issues, and exchange with other affected families are typical reasons for requesting psychosocial care