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. 2021 Aug 25;24(6):1995–2012. doi: 10.1111/hex.13340

Table 4.

Translation of the key concepts through the studies—postdata extraction

Second‐order interpretations Evidence in the paper Evidence in the paper Evidence in the paper Evidence in the paper Evidence in the paper Evidence in the paper Evidence in the paper Evidence in the paper
Paper 1 Slevin et al. 33 Paper 2 Sheridan et al. 34 Paper 3 Apps et al. 35 Paper 4 Fotokion et al. 36 Paper 5 Franklin et al. 37 Paper 6 Zeb et al. 38 Paper 7 Glenister et al. 39 Paper 8 Willard‐Grace et al. 40
Balancing social network participation with self‐care accountability and personal responsibility Digital health technology (DHT) fosters self‐efficacy and independence. Increases confidence in completing SMS tasks associated with COPD Helplessness undermines a personal ability to engage in SM People with COPD reported being unsure of what constitutes an SM activity Independence seeking; older people with COPD seek to reduce dependencies on others An assumed responsibility and accountability for making the right care or treatment choices People balance self‐care with finances and family. Often accountable for their care, but choosing to put family first Understanding the experiences of COPD and social connectedness in a rural context Managing illness and changing health behaviours can be internalized
Often leading to devising personal management strategies Challenging to discuss with professionals
The value of positive engagements with healthcare professionals where socially supported self‐care is relevant DHT promotes an equal discussion with health professionals. DHT records evidence of symptoms and supports articulation of symptoms in consultations Frustration over conflicting information from health professionals (issues with negative consultations) HP can support people with COPD to gain the maximum benefit from their SM endeavours People engage in care processes only with trusted healthcare providers People reported that generic education was not relatable. People wanted strategies to apply knowledge to individual situations Access to formal care provision is at a cost. Relationships are with informal healthcare providers and lay healers Positive relationships and open, candid conversations were valued with local rural healthcare professionals Lay coaching bridges this relationship. Aids service negotiation and honest conversations
People would value recognition of personal health status, mood and issues ‘Unheard’ patients reduced SM
Developing a personal understanding of illness through social participation and shared and personal experiences DHT prompts personal proactive responses to symptom changes Decisions shaped by experiences of failure in SM Strength loss and fatigue not associated with COPD External information‐seeking through peers. This information was deemed more accessible People reported having poor understanding of what constituted healthy and unhealthy choices The family, spirituality and community are highly valued. Some health beliefs are culturally nuanced, such as the belief that disease is a curse from god Learning to cope with and balance social life and adapt to new illness symptoms, learning when to seek help and link with others Lay explanations of disease and support with aspects of a person's life that they value the most
COPD confused with asthma, so misleading illness trajectories Trial and error adaptations to daily living were most acceptable Knowing that is derived from experiential constructs
Recognizing the importance of social networks to guide and validate personal choices in people with COPD Reassurance of support through online/offline feedback God, church and the family valued above all other things Poor social networks lead to frustration, unable to link with others. Positive networks foster discussions to adapt tasks and SM with other network members Familial groups can empower people by providing communication channels to the outside world The behaviours and choices of people with COPD were shaped by a broader social context Self‐care is encouraged and delivered by the extended family, including emotional and social needs. It is a selfless act, valued and encouraged Learning when to seek help, from the community through a community infrastructure Focus on psychosocial needs, housing and environment
Although not a person, people valued discussion around their condition Social isolation adds to the emotional burden Relational aspects of care most valued
Cultural value of social networks, people living alone struggled with SM

Abbreviation: COPD, chronic obstructive pulmonary disease.