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. 2021 May 1;22(11):2584–2596. doi: 10.1093/pm/pnab157

Table 6.

Themes and respondent comments based on the short informational video

Theme Example
Positive Perceptions
  • “I thought it was an effective way to bring attention to this issue.” (Public)

  • “I hadn’t thought about this issue at all until I saw the video.” (Public)

  • “Powerful video to show front line staff in LTC [long-term care] Homes and Physicians.” (Health Professional)

Personal Experience
  • “As a person who has Alzheimer's in the family and a person with chronic pain, I am worried that I will not have adequate pain relief if I am unable to tell someone how and where I hurt” (Caregiver)

  • “I give workshops for professional and family caregivers on the communication strategies needed to make an emotional connection that leads to safety and cooperation with care—this also provides the tools to locate pain/discomfort.” (Health professional)

  • “In my case, my husband & I have been caregivers for my mother for over five years.” (Caregiver)

Recommendations
  • “Please embed the link into the web page so that I can click on it” (Public)

  • “I would add information about other non-verbal signs of pain, such as restlessness, moving legs, changes in mood.” (Health Professional)

  • “Perhaps your next video would show how to make a connection first to assess for pain that would be good to model, you will learn much more about symptoms, read verbal, non-verbal and vocal utterances using good communication practice” (Caregiver)

Negative Perceptions
  • “I found the video too short.” (Caregiver)

  • “The video does not really address the issue adequately because it is so obvious from the grimacing along with his groaning that he is in pain” (Caregiver)

  • “Too focused on attributing his behaviors to pain, especially the lashing out.” (Public)