Table 2.
CSER consortium projects – state background information
| Study name (Lead institution) | State(s) involved | Medicaid expansion?a | Percent (%) of non-elderly adults without health insurance (2018 data)b |
Percent (%) of population below 200% of the federal poverty line (2018 data)c |
Percent (%) of population in rural areas (2018 data)d |
Percent (%) of population with limited English proficiencye (2015 data)f |
|---|---|---|---|---|---|---|
| United States average | – | – | 9.2 | 30.4 | 14.0 | 8.4 |
| CHARM (Kaiser Permanente Northwest) | Colorado | Yes | 8.8 | 24.7 | 12.5 | 6.6 |
| Oregon | Yes | 8.6 | 29.3 | 16.1 | 6.2 | |
| ClinSeq (NIH/NHGRI) | District of Columbia | Yes | 3.5 | 27.4 | 0 | 4.8 |
| Maryland | Yes | 6.9 | 20.9 | 2.5 | 6.4 | |
| Virginia | Yes | 10.1 | 24.5 | 12.2 | 5.6 | |
| KidsCanSeq (Baylor College of Medicine) | Texas | No | 20.0 | 34.2 | 10.7 | 14.2 |
| NCGENES 2 (University of North Carolina) | North Carolina | No | 12.9 | 33.5 | 21.3 | 4.8 |
| NYCKidSeq (Icahn School of Medicine at Mount Sinai & Montefiore Medical Center) | New York | Yes | 6.2 | 29.7 | 7.0 | 13.4 |
| P3EGS (University of California, San Francisco) | California | Yes | 8.2 | 29.8 | 2.1 | 19.4 |
| SouthSeq (HudsonAlpha Institute for Biotechnology) | Alabama | No | 12.2 | 36.5 | 23.3 | 2.4 |
| Kentucky | Yes | 6.6 | 36.1 | 41.0 | 2.1 | |
| Louisiana | Yes | 9.3 | 40.0 | 16.1 | 2.8 | |
| Mississippi | No | 14.5 | 41.3 | 53.4 | 1.6 |
CSER, Clinical Sequencing Evidence-Generating Research consortium; NIH, National Institutes of Health; NHGRI, National Human Genome Research Institute; CHARM, Cancer Health Assessments Reaching Many; NCGENES 2, North Carolina Clinical Genomic Evaluation by Next-generation Exome Sequencing 2; P3EGS, Program in Prenatal and Pediatric Genome Sequencing.
a
Data from the Kaiser Family Foundation [39].
b
Data from the Kaiser Family Foundation [40].
c
Data from the Kaiser Family Foundation [41].
d
Data from the USDA Economic Research Service [42].
e
Data from LEP.gov [43].
f
Limited English proficiency is defined as persons 5 years of age and older who speak English “less than very well” [44].