Table 3.

Measure Characteristics of 7 Most Commonly Used Instruments

	Glasgow Outcome Scale (N=75)	Pediatric Overall Performance Category (N=28)	General Health Questionnaire (N=17)	School Performance (N=12)	Functional Status Scale (N=4)	King’s Outcome Scale (N=4)	Royal Alexandra Hospital for Children Measure of Function (N=4)
Method of Assessment, N
In-person	20	4	7	3	1	2	1
Phone Interview	19	7	2	7	1	0	4
Chart Review	14	8	1	2	0	0	0
Standard mail	3	0	4	1	0	1	0
Electronic	0	0	0	1	0	0	0
Other	2	2	1	2	0	0	0
Not specified	31	11	5	4	0	1	0
Source of data, N
Patient/clinician	21	8	4	3	1	3	1
Parent/guardian	20	12	14	7	2	0	3
Medical record	12	8	2	1	0	0	0
Other	0	0	0	1	0	0	0
Not specified	39	8	1	4	0	1	1
Number of time points evaluated, Median (IQR)	1.0 (1.0–1.0)	1.0 (1.0–1.0)	1.0 (1.0–1.0)	1.0 (1.0–1.0)	1.5 (1.0–2.0)	1.0 (1.0–2.5)	1.0 (1.0–1.5)
Year of manuscript, Median (IQR)	2009.5 (2005.0–2013)	2010.0 (2006.0–2014.5)	2006.0 (2005.0–2010.0)	2008.5 (1995.0–2016.5)	2012.5 (2008.0–2017.0)	2013.0 (2009.0–2015.5)	2010.0 (2004.5–2013.0)
Anchor point of outcome, N
Hospital or ICU admission	29	10	4	2	1	2	0
Hospital discharge	9	8	5	3	1	0	0
ICU discharge	6	5	2	1	0	1	4
Discharge, NOS	11	0	2	3	0	0	0
Other	17	2	1	0	0	0	0
Not specified	0	0	0	0	2	0	0
Final post-discharge time point, N
<1 month	0	2	0	0	0	0	0
1 to 3 months	7	3	2	0	0	0	0
3 to 6 months	20	3	0	0	0	0	0
6 to 9 months	6	1	2	0	0	0	0
9 to 12 months	13	9	5	0	0	1	1
12 to 24 months	4	2	0	2	0	1	2
>24 months	17	2	5	4	1	0	1
Not specified	8	6	3	6	3	2	0

The number of methods of assessment and source of data may not equal the total number of studies utilizing that instrument as each measure could have used multiple methods or sources. ICU: Intensive Care Unit; NOS: Not otherwise specified