Table 1.

Demographic data of participants in the observed decision events and dropout reasons

Patients			Family
	Observed	Interviewed		Observed	Interviewed
N	45	3	N	42	13
Female/male, N	27/19	1/2	Female/male, N	25/17	6/7
Age mean (range)	61 (19–94)	–	Relation to patient
			Daughter/son	23	6
Reasons for not being interviewed	15		Parent	6	2
Death	2		Spouse/partner	16	4
Declined participation in hospital/declined later or lost contact	4/8		Daughter-in-law	3	1
Missed to be approached by MS or hospital research nurse	13		Sibling/niece/grandchild	7	–
			Reasons for not being interviewed
			Declined	6
			Not asked due to distress	7
			Not available/no response to initial information	9
			Other family interviewed instead	7

Clinicians
	Total N=80	Consultant	Registrar	Junior doctor	Outreach nurse*
Female/male, N	25/55	6/26	10/25	3/3	6/1
Age mean (range)	42 (25–60)	46 (34–60)	34 (27–52)	31 (25–40)	44 (28–60)
Years experience in current specialty, mean (range)	8 (0.1–22)	10.0 (0.5–22)	4 (0.1–20)	2 (0.2–4)	8 (0.3–15)
Years experience since graduation, mean (range)	17 (1–41)	23 (10–36)	10 (4–29)	4 (1–12)	44 (28–60)
Specialty
Intensive care	55	23	19	0	7
Medical specialties	15	7	8	6	0
Surgical specialties	4	1	3	0	0
Acute/emergency medicine	6	1	5	0	0

*Critical care outreach nurses, supporting ward nurses and doctors who are caring for acutely ill inpatients.