Table 3.
Major themes | Minor themes |
---|---|
Negotiating health care systems | 1. Shared decision making 2. Specialist palliative care services 3. The value of bereavement care |
The caring experience | 1. Understanding the caring role 2. Reality sets in 3. A change to relationships 4. Mental and physical exhaustion 5. Needing time-out 6. Geographical isolation 7. Medication management 8. The rollercoaster of grief |