Table 5.
Quotes to illustrate ‘Acceptability of treat to target’
| Quote no. | Quote |
|---|---|
| Q1 | ‘Yes, so if you’re having these frequent visits in the first year, and then people know what’s going on, everyone knows what you’re working towards…you get to learn the disease better, to understand the treatments’. (P9_12y) |
| Q2 | ‘The treat to target one is better because every month they can check on you so there’s no risk. In the three months one, there are three months without checking on you…for a new patient it would be better because they have a better chance of having a good experience in life’. (C4_11y) |
| Q3 | ‘If I was newly diagnosed, I wouldn’t be very happy with [routine care], especially with the gaps between the visits. The fact there’s no targets means you won’t have an aim before and after you go to an appointment. Compared with this T2T, this routine care isn’t very good’. (C1_16y) |
| Q4 | ‘I just think it would be better to have a target, because it means more communication between you and the clinic, basically’. (C5_18y) |
| Q5 | ‘Because it just shows that you’re getting better, so you don’t really need them as much, and you can just cut them down and then eventually stop having them’. (C11_15y) |
| Q6 | ‘Okay, I should take this medicine because after a week or so I have to give the blood test, or something’. So I think it will make children punctual, themselves, to get medicine’. (P8_14y) |
| Q7 | ‘You know, your time off work, it’s paying for your car parking, all your other kids and stuff. So, that’s always on your mind, as well as them doing all this’. (P2_17y). |
| Q8 | ‘It is good to have a target in mind, but if they don’t reach it by a certain time, you shouldn’t push it. It is likely to be reached’. (C2_17y) |
| Q9 | ‘Maybe that [treat to target] would be a bit too confusing and stressful for the patient, because if you’re continuously changing the medicines, they might start thinking that something is wrong with them and the medicine is not working on them…so maybe they have to give it more time for them to reach the target’. (C8_14y) |
| Q10 | ‘I struggle to see with lupus because there are so many different areas…You could just be treating some symptoms, but not the actual issue’. (P2_11y) |
| Q11 | ‘I think, maybe, monthly might be a bit short…but maybe a six-week thing…because it’s just a little bit extra time…I think it’s just important to give the medication time’. (C5_18y) |
| Q12 | ‘For three to six months, they’ll go monthly and then I think once they come into a routine medication, they just need to go the standard three months…Once they’re settled, yes’. (C8_14y) |
| Q13 | ‘I mean with the T2T, I absolutely agree it’s probably a better way of going about things than just the normal routine care as long as obviously people are aware…, which doctors will be, and parents are made aware that things can change and they change very quickly’. (P7_9y) |
| Q14 | ‘They should let everyone have the chance [to be treated to target]’. (C4_11y) |