Table 1.
Demographic data on children with epilepsy and their caregivers (n = 200)
| Education Only Group (n=29) | STAR Intervention Group (n=27) | Withdraw Group (n=23) | Non-Randomized Group (High Adherence; n=121) | |
|---|---|---|---|---|
|
| ||||
| M±SD | M±SD | M±SD | M±SD | |
|
| ||||
| Child Age (years) | 8.15±3.30 | 7.13±2.80 | 7.58±2.89 | 7.05±2.98 |
| Months since epilepsy diagnosis | 2.63±2.64 | 2.49±2.04 | 2.58±1.95 | 2.76±2.32 |
| Duncan score | 48.99±22.5 | 49.94±19.64 | 65.41±19.00 | 52.27±20.82 |
| N (%) | N (%) | N (%) | N (%) | |
| Child Sex | ||||
| • Girls | 14 (48%) | 15 (56%) | 65 (54%) | 11 (48%) |
| • Boys | 15 (52%) | 12 (44%) | 56 (46%) | 12 (52%) |
| Child Race | ||||
| • White: Non-Hispanic | 21 (72%) | 18 (67%) | 102 (84%) | 18 (78%) |
| • White: Hispanic | 0 (0%) | 0 (0%) | 3 (2.5%) | 0 (0%) |
| • Black: Non-Hispanic | 5 (17%) | 5 (18%) | 5 (4%) | 4 (17%) |
| • Black: Hispanic | 1 (3.4%) | 0 (0%) | 0 (0%) | 0 (0%) |
| • More than one race: Non-Hispanic | 1 (3.4%) | 4 (15%) | 7 (6%) | 1 (4%) |
| • More than one race: Hispanic | 1 (3.4%) | 0 (0%) | 1 (1%) | 0 (0%) |
| • Asian | 0 (0%) | 0 (0%) | 3 (2.5%) | 0 (0%) |
| Seizure Type | ||||
| • Focal Onset | 8 (27.5%) | 3 (11%) | 45 (37%) | 4 (17%) |
| • Generalized Onset | 11 (38%) | 20 (74%) | 47 (39%) | 9 (39%) |
| • Unknown Onset (e.g., unclassified) | 10 (34.5%) | 4 (15%) | 29 (24%) | 10 (44%) |
| Initial Prescribed Anti-epileptic Drug | ||||
| • Carbamazapine | 6 (21%) | 0 (0%) | 18 (15%) | 3 (13%) |
| • Ethosuximide | 6 (21%) | 12 (44%) | 32 (26%) | 4 (17%) |
| • Levetiracetam | 7 (24%) | 5 (18.5%) | 39 (32%) | 9 (39%) |
| • Oxcarbazepine | 2 (7%) | 1 (3.7%) | 11 (9%) | 1 (4%) |
| • Lamotrigine | 0 (0%) | 0 (0%) | 3 (3%) | 0 (0%) |
| • Topiramate | 0 (0%) | 1 (3.7%) | 1 (1%) | 0 (0%) |
| • Valproic Acid | 8 (27%) | 8 (30%) | 17 (14%) | 6 (26%) |
| Primary Caregiver | ||||
| • Mother/Stepmother | 27 (93%) | 26 (96%) | 113 (93%) | 18 (78%) |
| • Father/Stepfather | 0 (0%) | 0 (0%) | 7 (6%) | 3 (13%) |
| • Other (e.g., grandmother, uncle/aunt) | 2 (7%) | 1 (4%) | 1 (1%) | 2 (9%) |
| Caregiver Marital Status | ||||
| • Single | 6 (21%) | 11 (40.7%) | 13 (11%) | 5 (21.7%) |
| • Married | 18 (62%) | 11 (40.7%) | 101 (83%) | 13 (56.5%) |
| • Divorced/Separated | 5 (17%) | 4 (15%) | 5 (4%) | 5 (21.7%) |
| • Widowed | 0 (0%) | 1 (3.7%) | 2 (2%) | 0 (0%) |
Note: No significant differences were found between those who withdrew and those randomized on child age, time since diagnosis, family Duncan scores, race/ethnicity, or sex.