| Scores (%) | ||
|---|---|---|
| Q1. What age group are you in? | ||
| 18–39 | 1 (3.6) | |
| 40–59 | 11 (39.3) | |
| 60–79 | 15 (53.5) | |
| 80 or older | 1 (3.6) | |
| Q2. What statement best describes your current life with hypertension? | ||
| I am diagnosed with hypertension, but I feel no restrictions. | 18 (64.3) | |
| I have early symptoms of complications due to hypertension, but my quality of life still is very good. | 2 (7.1) | |
| My hypertension causes minor restrictions in my life. | 3 (10.7) | |
| My daily life activities are impaired due to my hypertension or its complications. | 5 (17.9) | |
| I am not able to work because of my hypertension or its complications. | 0 (0.0) | |
| Q3. How do you feel about your hypertension? * | ||
| I have hypertension, but feel confident that I can live a close-to-normal life in the future | 13 (46.4) | |
| I am worried about the negative effect hypertension may have on my life expectancy | 7 (25.0) | |
| I am worried about the reduced quality of life my hypertension may cause in the future | 4 (14.3) | |
| I feel well cared for | 9 (32.1) | |
| Other | 1 (3.6) | |
| Q4. Please tick which communication devices you have. * | ||
| Landline at home | 15 (53.6) | |
| Mobile phone or smartphone with access to the internet | 20 (71.4) | |
| Mobile phone or smartphone without access to the internet | 1 (3.6) | |
| PC with access to the internet (modem, through cable operator, satellite, etc.) | 16 (57.1) | |
| PC without access to the internet | 0 (0.0) | |
| Tablet with access to the internet | 7 (25.0) | |
| Q5. Do you have access to a hypertension plan, such as a document (online, paper) that contains relevant understandable information and can be used by your doctor and yourself to discuss your care? | ||
| Yes, I have access to such a plan online | 4 (14.3) | |
| Yes, I have access to a such a plan as paper document(s) | 4 (14.3) | |
| No | 16 (57.1) | |
| I do not know | 4 (14.3) | |
| Q6. If you do not have access to such a plan, would you like to in the future? | ||
| Yes | 18 (90.0) | |
| No | 2 (10.0) | |
| Q7. What kind of information would you like for such a plan to contain? * | ||
| Information and alerts about when I should visit my doctor | 21 (75.0) | |
| Setting lifestyle goals in the plan (e.g., exercise goals, diet goals) | 16 (57.1) | |
| Managing the drugs that I am taking and receiving reminders | 16 (57.1) | |
| Information about what I can do to contribute to a good therapy | 15 (53.6) | |
| The most relevant issues I should work on together with my doctor in the next three months | 16 (57.1) | |
| Information about situations in which I should get into contact with my doctor | 15 (53.6) | |
| Other | 0 (0.0) | |
| Q8. What is most important to you in order to use such a plan? * | ||
| My personal data is secure and protected | 13 (46.4) | |
| I can access the plan online (Internet connection required) | 17 (60.7) | |
| I can update the information in the plan | 7 (25.0) | |
| I can share the document with my doctor and others (other doctors, family members) | 10 (35.7) | |
| I can understand the plan because it uses language which is easy to understand | 11 (39.3) | |
| I can see my progress against the goals that have been set together with my doctor | 10 (35.7) | |
| I can see the progression of my disease (e.g., systolic/diastolic blood pressure) | 15 (53.6) | |
| I can review my medication and dosage | 11 (39.3) | |
| Other | 0 (0.0) | |
| Q9. Please provide up to three ideas and suggestions for what a shared hypertension document between you and your doctor should be able to do. Use sentences such as “I would like to be able to...” and “I wish there were...”. (Free text) | ||
| Q10. With regard to the training that hypertension patients typically receive, please tick which topics are relevant to you at some point in your life with hypertension. * | ||
| I want to know which foods are good and which I should avoid in order to to stay healthy | 17 (60.7) | |
| I want to know what physical activity and exercise help me maintain a healthy life with hypertension | 17 (60.7) | |
| I want to know what goals I should set in my plan to manage my blood pressure well | 9 (32.1) | |
| I want to learn about the best ways to handle stress | 10 (35.7) | |
| I want to know what the medication I am taking is for and what to do if I forget to take it | 12 (42.9) | |
| I want to know about technology and what medical equipment I can use to help me manage my hypertension | 9 (32.1) | |
| I want to know about all the different parameters that need to be monitored to keep the hypertension in control | 10 (35.7) | |
| I want to know what the appropriate actions are, in order to manage my disease on my own | 15 (53.6) | |
| I want to know what complications can occur with hypertension patients and how to react | 18 (64.3) | |
| Other | 0 (0.0) | |
| Q11. Have you received training for managing your hypertension yet? | ||
| Yes | 9 (32.1) | |
| No, I have not been offered any training by my doctor | 19 (67.9) | |
| No, I have declined to attend training offers by my doctor | 0 (0.0) | |
| Q12. If you have attended any hypertension management training courses, how personalised were they? * | ||
| The training took into account my age (minimum: child, adult, elderly) | 3 (33.3) | |
| The training took into account my medication | 4 (44.4) | |
| The training was available in other languages than my own | 0 (0.0) | |
| The training ensured that my personal questions were answered | 3 (33.3) | |
| Other | 3 (33.3) | |
| Q13. Which one of the following forms of training would you prefer to receive? | ||
| Online training (online materials, messages, videos) | 6 (21.4) | |
| Face-to-face training/physical presence | 8 (28.6) | |
| Mixed online and face-to-face training | 14 (50.0) | |
| Q14. With time, the care process needs may have to be adjusted, e.g., new medication, change in diet. Which method would you prefer in order to master such changes? * | ||
| Face-to-face training with a doctor or nurse | Personalized 11 (39.3) |
lecture-style 6 (21.4) |
| Paper materials relating to the change | specifically put together and printed for me 5 (17.9) |
general (e.g., leaflets) 3 (10.7) |
| Online hypertension knowledge base (e.g., website, platform) which I use myself | which I can use to read and add content 9 (32.1) |
that I can use to read content 7 (25.0) |
| Messages delivered on my mobile devices that are personalised for me | Personalized 14 (50.0) |
General 1 (3.6) |
| Q15. If you have attended hypertension management training course(s), how satisfied were you overall with them | ||
| very satisfied | 4 (14.3) | |
| somewhat satisfied | 4 (14.3) | |
| neither satisfied nor dissatisfied | 1 (3.6) | |
| somewhat dissatisfied | 0 (0.0) | |
| very dissatisfied | 0 (0.0) | |
| Q16: Have you felt at some point the need to re-visit certain aspects of the training courses? | ||
| Yes | 4 (14.3) | |
| No | 2 (7.1) | |
| Q17. Based on your experience with receiving training for hypertension, please provide up to three ideas and suggestions for improvement. Use sentences such as “I would like to see more...” and “I wish there were...”. (Free text) | ||
| Q18. What parameters do you currently monitor or are aware of that relate to managing your hypertension? * | ||
| Blood pressure | 25 (89.3) | |
| Pulse frequency | 23 (82.1) | |
| Weight | 16 (57.1) | |
| Blood cholesterol | 15 (53.6) | |
| Body fat | 7 (25.0) | |
| Body muscle | 0 (0.0) | |
| Blood sugar (glucose levels) | 13 (46.4) | |
| Physical activity (steps walked, stairs climbed) | 12 (42.9) | |
| Alcohol intake | 5 (17.9) | |
| Tobacco use | 5 (17.9) | |
| Other | 1 (3.6) | |
| Q19. Do you have and/or use any tools or devices to monitor such data or to generally inform yourself about your disease? * | Have | Use |
| Blood pressure monitor | 16 (57.1) | 7 (25.0) |
| Electronic scale | 5 (17.9) | 6 (21.4) |
| Notebook/PC | 8 (28.6) | 3 (10.7) |
| Tablet | 4 (14.3) | 0 (0.0) |
| Smartphone | 8 (28.6) | 4 (14.3) |
| Other | 1 (3.6) | 1 (3.6) |
| Q20. How do you currently communicate with your doctor regarding your disease? * | ||
| Via visitation, which the doctor initiates | 17 (60.7) | |
| Via visitation, which I have initiated | 12 (42.9) | |
| Via visitation, which the nurse has initiated | 4 (14.3) | |
| Via phone calls | 6 (21.4) | |
| Via phone messages (SMS, WhatsApp, etc.) | 2 (7.1) | |
| Via VoIP (e.g., Skype) and/or video conferencing | 0 (0.0) | |
| Via social media (e.g., Facebook, twitter) | 0 (0.0) | |
| Other | 3 (10.7) | |
| Q21. Do you wish for a more flexible communication than the current situation? | ||
| Yes | 14 (50.0) | |
| No, I am satisfied with the current way of communication | 11 (39.3) | |
| Q22. About what would you like to communicate with your doctor additionally? (Free text) | ||
| Q23. Which method or combination of methods do you think would be the most efficient for you to communicate with your doctor in the future? * | ||
| Via visitation, which the doctor initiates | 23 (82.1) | |
| Via visitation, which I have initiated | 11 (39.3) | |
| Via phone calls | 6 (21.4) | |
| Via phone messages (SMS, WhatsApp, etc.) | 11 (39.3) | |
| Via VoIP (e.g., Skype) and/or video conferencing | 9 (32.1) | |
| Via social media (e.g., Facebook, twitter) | 3 (10.7) | |
| Other | 2 (7.1) | |
| Q24. Based on your experience with communicating with your doctor, please provide up to three ideas and suggestions for improvement. Use sentences such as “I would like to...” and “I wish I could...”. (Free text) | ||
| Q25. Are you currently part of a community that deals with the aspect of hypertension? | ||
| Yes, a community specialised in hypertension only | 0 (0.0) | |
| Yes, a community which deals with hypertension among other topics | 0 (0.0) | |
| Yes, an informal community (e.g., friends group) | 0 (0.0) | |
| No | 26 (92.9) | |
| Q26. What topics would you consult the community about? * | ||
| I want to know which foods are good and which I should avoid to stay healthy | 14 (50.0) | |
| I want to know what physical activity and exercise helps me to maintain a healthy life with hypertension | 11 (39.3) | |
| I want to know what goals I should set in my plan to manage my hypertension well | 13 (46.4) | |
| I want to learn about best ways to handling stress | 9 (32.1) | |
| I want to know what the medication I am taking is for and what to do if I forget to take it | 9 (32.1) | |
| I want to know about technology and medical equipment I can use to help me manage my hypertension | 9 (32.1) | |
| I want to know about all the different parameters that need to be monitored to keep the hypertension in control | 7 (25.0) | |
| I want to post information and exchange ideas with others | 12 (42.9) | |
| I want to know what are appropriate actions to take in order to manage my disease on my own | 8 (28.6) | |
| I want to know what complications can occur with hypertension patients and how to react | 9 (32.1) | |
| Other | 9 (32.1) | |
| Q27. What do you expect from a community around hypertension? Please provide up to three ideas and suggestions for improvement. Use sentences such as “I would like to...” and “I wish I could...”. (Free text) | ||
| Q28 If you have some other ideas on what you would want to see added to the solution we will create, please write here: (Free text) | ||
* multiple choice.