TABLE 1.

Presentation of four main themes with subthemes.

Themes	Subthemes
Challenges with disability diagnosis	False blame, held accountable, culture and religion, ignoring the obvious, shifting responsibility, abandonment because of disability and health.
Negative attitudes of the health professionals	The nurses scolded me, discouraging unsupportive feedback, late diagnosis undermined future prospects.
Health- and rehabilitation-related challenges	Long distances and inaccessible healthcare services, resort not to access healthcare services, risking one’s life to gain access to health services.
Lack of support from family and community	My child was ridiculed, spiteful family members, disability myths leading to exclusion, humiliation at school led to further exclusion, resorting to fend for oneself.

Source: Adapted from Braun, V., Clarke, V., Hayfield, N. & Terry, G., 2019, Thematic analysis, Springer, Singapore.