Table 1.
Experience and expectation of individuals with lived experience of nonsuicidal self-injury (n=29).a
| Experiences and expectations | Disagree to disagree completely | Agree to agree completely | |
| Subjective experience, n (%) | |||
|
|
By completing the questions in everyday life, I became more aware of how I felt | 4 (14) | 23 (79) |
|
|
By completing the questions in everyday life, I became more aware of my thoughts | 3 (10) | 21 (72) |
|
|
Participating in the smartphone study was tiring | 7 (24) | 14 (48) |
|
|
I would describe my participation as a positive experience | 3 (10) | 19 (66) |
| The overall importance of receiving study findings, personal feedback on own data, and financial compensation, n (%) | |||
|
|
I am interested in the overall results of the study | 0 (0) | 29 (100) |
|
|
Receiving personal feedback is an important reason for me to participate | 8 (28) | 13 (45) |
|
|
Receiving financial compensation is an important reason for me to participate |
4 (14) | 12 (41) |
| The relative importance of general and personal feedback and financial compensation, n (%) | |||
|
|
If I receive feedback on the overall results, financial compensation is not necessary | 23 (79) | 1 (3) |
|
|
If I receive feedback on the overall results, personal feedback is not necessary |
21 (72) | 5 (17) |
|
|
If I receive financial compensation, personal feedback is not necessary | 23 (79) | 2 (7) |
|
|
If I receive personal feedback, financial compensation is not necessary | 18 (62) | 5 (17) |
| Expected financial compensation (Euros), €1=US $1.15, median (IQR) | |||
|
|
What amount do you consider fair as compensation when you also receive general and personal feedback? | N/Ab | 60 (45.0-75.5) |
|
|
What amount do you consider fair as compensation when you receive general but not personal feedback? | N/A | 70 (55.0-81.5) |
aUnpublished data of 29 young adults with lived experience following participation in a 12-day real-time monitoring protocol with 96 semirandom longitudinal assessments (8/day, median compliance 79.2%; IQR 70.3%-91.7%; 29/30, 97% retention [35]). The response category “neutral” is not shown in the table.
bN/A: not applicable.