Table 1.
Reference, Country | Research Question(s) or Purpose/Objectives | Research Design/Methods | Participants | Results and Connection to Cultural Safety |
---|---|---|---|---|
Richels et al17 (2020), Canada | Identify existing barriers to home peritoneal dialysis; provide insight for a culturally meaningful framework for future programs in First Nations communities in Saskatchewan | Qualitative research - sharing circles, individual interviews | 67 participants in sharing circles | Themes included: logistics, education and information, training and support, community support, and culture and leadership; notes underuse of home-based peritoneal dialysis |
Jansen et al19 (2020), Canada | Identify culturally appropriate and co-developed indigenous educational tools to support CKD learning and end-stage kidney treatment decision making | Scoping review | 1 article; CKD tool co-developed by researchers | Engaging with indigenous communities requires in-depth understanding; the co-development of indigenous CKD educational tools is lacking |
Hughes et al18 (2019), Australia | Describe health care experiences in relation to a government’s kidney health care | Qualitative interviews | 26 adults | Acknowledges land and self-determination concepts; identifies complaint of lack of respect and empathy from health care providers; addresses needs to further health care quality |
Walker et al21 (2019), New Zealand | Identify systemic barriers and understanding of cultural values that influence kidney transplantation | A systematic review of qualitative studies | 225 indigenous participants in Australia, New Zealand, Canada, and the United States | Related to indigenous ways of knowing and being; identified barriers include distrust of health care systems, lack of knowledge of kidney transplantation processes, and discrimination; among indigenous participants, access to kidney transplantation was strongly desired |
Conway et al23 (2018), Australia | Examine impact of mobile dialysis on health and well-being; facilitators and barriers | Semi-structured interviews | 15 indigenous dialysis patients and 10 nurses | Country reference similar to a family bond, tradition, links with ownership and spirituality |
Nelson et al20 (2018), United States | Examine efficacy of a home-based kidney care program | Clinical trail | 98 rural adult Zuni Indians | A home-based intervention improved activation in own health and health care and may reduce CKD risk factors for disadvantaged rural area; interventions through community members who are trained furthered the educational process and helped engage patients in own care |
Rix et al28 (2016), Australia | Aim to inform service improvement for Aboriginal kidney patients | Qualitative research; community-based research | 18 Aboriginal hemodialysis patients and 29 kidney health professionals | Related to indigenous ways of being and knowing; land/self-determination colonialism; relationality; Cultural Safety requires listening to what people are saying |
Reilly et al24 (2016), Australia, New Zealand, Canada | Examine benefits, cost-effectiveness, and suitability of CKD management programs for indigenous people, in addition to enablers and barriers | Systematic review of mixed evidence | 10 studies were included | Describes the challenge of recruiting and retaining staff in remote communities, need for indigenous decision making, respect, ownership and health care workers |
Kelly et al29 (2016), Australia | Develop a more responsive education program | Participatory action research | Kidney focus group of kidney and health care professionals | Related to knowledge of history/colonialism; humility and safety to be reflected through case studies; emphasis on indigenous Culturally Safe care |
Walker et al22 (2012), New Zealand | Describe and discuss what predialysis nurses perceive to be key influences on effective predialysis nursing care | A descriptive exploratory approach | 11 interviews with 11 nurses | Important to provide culturally appropriate and effective care; lack of culturally diverse educational resources identified as barrier to providing effective care; the Western approach of focusing on individuals is not always effective in this population |
Rix et al27 (2014), Australia | Inform the provision of health care services as depicted by the indigenous people themselves | Qualitative stories | 5 indigenous participants | Exemplifies Cultural Safety, uses storying, reflection on colonial historical past, unequal power relationships and indigenous ways of being and knowing within a kidney context |
Shah et al25 (2014), United States | Identify barriers to health care in the Zuni Pueblo | 14 one-hour focus group sessions | 112 people | Recommends implementation of culturally community-based health promotion programs and preventive screening to improve access and reduce disparities |
Walton30 (2011), United States | Describe differences regarding cultural knowledge and awareness in students before and after receiving education re indigenous experiences with hemodialysis therapy by a nephrology nurse; examine how students apply culturally relevant care when given a case scenario with CKD | Quantitative -pre- and post-tests based on 1-h presentation and qualitative-reflective paper | N = 95 nursing students | Indigenous ways of knowing and being are discussed; “Storytelling, networking, and involvement of Native American leaders, and the creation of new models that integrate cultural traditions in care may be keys to bridging the cultural gaps that exist”(p27) |
Sicotte26 (2011), Canada | Compares health and care use of patients receiving tele-hemodialysis services | Pre-post design | N = 19 | Telemedicine reduces the burden associated with access for hemodialysis |
Walton30 (2011), United States | Explore what spirituality means to individuals receiving hemodialysis. and spirituality’s influence on their lives | Grounded theory | N = 21; 12 women and 9 men | Focus on spirituality, traditional approaches, consideration and recommendations for developing and transitioning into hemodialysis; also explores ways to decrease depression, reconcile past issues and further relationships |
Abbreviation: CKD, chronic kidney disease.