Table 3.
Perceived Needs for Resources to Overcome Barriers to Genetic Testing
| Total | |
|---|---|
| N | 149 (100%) |
| Resources | |
| Detailed results with implications for patient and/or biological relatives | 78 (52%) |
| Insurance or billing support | 75 (50%) |
| Easy ordering process | 69 (46%) |
| Access to genetic counselors for myself and my patients | 51 (34%) |
| Educational Resources for Physicians | |
| Refresher on genetic causes of CKD | 100 (67%) |
| Education about how to talk to patients about options for testing and result implications | 81 (54%) |
| Resources to help educate patients on genetic causes of CKD and family planning needs | 103 (69%) |
| None | 5 (3%) |
| Educational Resources for Patients | |
| Basics of genetic kidney disease | 107 (72%) |
| Implications for family, such as living related donors, family planning | 126 (85%) |
| Details on how to interpret results of genetic tests | 111 (75%) |
| Privacy of genetic information | 66 (44%) |
| Insurance implications of a positive finding | 89 (60%) |
Abbreviations: CKD, chronic kidney disease.