Table 2:
Infant and Parent Characteristics
| Characteristic | Median (Range) or n (%) |
|---|---|
| Infant Characteristics (n=25)a | |
| Gestational age at birth, wk | 33 (23–40) |
| Sex, Female | 14 (56) |
| Medical condition | |
| Prematurity (<37 weeks) | 15 (60) |
| Seizures | 7 (28) |
| Congenital heart disease | 7 (28) |
| Brain malformation | 7 (28) |
| Hypoxic ischemic encephalopathy (HIE) | 5 (20) |
| Intraventricular hemorrhage | 5 (20) |
| Parent Characteristics (n=32)b | |
| Age, y | 28 (19–38) |
| Gender | |
| Female | 21 (66) |
| Male | 8 (25) |
| Other/not reported | 2 (6) |
| Race and ethnicity | |
| White | 9 (28) |
| African American | 14 (44) |
| Asian | 2 (6) |
| Hispanic/Latinx | 4 (13) |
| More than one race | 1 (3) |
| Other/not reported | 2 (6) |
| Level of education | |
| Less than high school | 3 (9) |
| High school/GED | 7 (22) |
| Some college | 4 (13) |
| Bachelor’s degree | 7 (22) |
| Graduate or professional degree | 4 (13) |
| Annual household income | |
| Less than $25,000 | 10 (31) |
| $25,000–$49,999 | 9 (28) |
| $50,000–$99,999 | 3 (9) |
| $100,000–$149,999 | 2 (6) |
| Greater than $150,000 | 5 (16) |
| Not reported | 1 (3) |
| Previous involvement in family member’s ICU care | 11 (34) |
a
One case has two infants enrolled.
b
One parent did not complete study surveys.