TABLE 1.
Characteristics of sample (N = 1,146)
| Demographics | N | % | Country | N | % | EDS type | N | % |
|---|---|---|---|---|---|---|---|---|
| Age | United States | 900 | 78.5 | Hypermobile/hypermobility spectrum disorders | 1046 | 91.3 | ||
| Mean | 1,146 | 38.2 ± 11.5 | England | 111 | 9.7 | Classic | 50 | 4.4 |
| Range | 1,146 | 18–77 | Canada | 46 | 4.0 | Not sure which type | 21 | 1.8 |
| Menopausal | 217 | 18.9% | Australia | 23 | 2.0 | Vascular | 10 | 0.9 |
| Scotland | 8 | 0.7 | Classical‐like | 9 | 0.8 | |||
| Gender | Belgium | 6 | 0.5 | Kyphoscoliotic | 6 | 0.5 | ||
| Female | 1,144 | 99.8 | Ireland | 6 | 0.5 | Cardiac‐valvular | 2 | 0.2 |
| Transgender | 2 | 0.2 | Norway | 5 | 0.4 | Arthrochalasia | 1 | 0.1 |
| South Africa | 5 | 0.4 | Myopathic | 1 | 0.1 | |||
| Race a | Wales | 5 | 0.4 | Brittle cornea | 0 | 0 | ||
| White | 1,063 | 92.8 | The Netherlands | 4 | 0.3 | Dermatosparaxis | 0 | 0 |
| Black or African American | 12 | 1.0 | New Zealand | 4 | 0.3 | Musculocontractural | 0 | 0 |
| American Indian or Alaskan Native | 17 | 1.5 | Sweden | 3 | 0.3 | Periodontal | 0 | 0 |
| Asian | 11 | 1.0 | Denmark | 2 | 0.2 | Spondylodysplastic | 0 | 0 |
| Native Hawaiian or Pacific Islander | 3 | 0.3 | France | 2 | 0.2 | |||
| Other | 47 | 4.1 | Germany | 2 | 0.2 | |||
| Italy | 2 | 0.2 | ||||||
| Ethnicity (N = 1,138) | Jordan | 2 | 0.2 | |||||
| Hispanic/Latino | 41 | 3.6 | Countries with one participant | 10 | 1.0 | |||
| Not Hispanic/Latino | 1,046 | 91.9 | ||||||
| Unknown or Not Reported | 51 | 4.5 |
Abbreviation: EDS, Ehlers–Danlos syndromes.
a
Participants selected all races they identified with.