Table 1.

Decision aid content

1. You are not alone	This introductory video (07:53 min), is intended to normalise the experience and set the stage before some of the more technical information in the tool. Key messages are: this is a difficult time for you, it’s OK to cry, you didn’t cause this, and you are the most qualified to make this decision. The video also describes the goals of the tool.
2. How the heart works	This section includes animations and information on the cardiovascular system, normal fetal and postfetal heart circulation, defects that can take place during heart development that lead to abnormal heart function, and a glossary of medical terms.
3. What is a congenital heart defect?	This section defines congenital heart defects and how they are caused and diagnosed.
4. How we talk about congenital heart defects	This section introduces parents to topics and terms that are often used when discussing congenital heart defects, including statistics, diagnosis variability, survival and quality of life (eg, developmental delay in cognitive abilities)
5. Learn more about your baby’s diagnosis	This section shows parents individualised information specific to their fetus/neonate’s diagnosis. Diagnoses available in this section include hypoplastic left heart syndrome, complex single ventricle, complex single ventricle with heterotaxy (isomerism), pulmonary atresia with intact ventricular septum, Ebstein’s anomaly of the tricuspid valve (with severe leak) and truncus arteriosus. Each diagnosis profile includes animated videos depicting the defect, statistics related to how common the defect is, other associated conditions, risks of having another child with the defect and expected outcomes without treatment.
6. Learn more about your choices	This is divided into three sections: surgery, comfort care and ending the pregnancy. Each section begins with a ‘What to Expect’ overview and includes a description of the medical team members who may be involved, financial implications, living with this decision, and links to other websites and support groups. Additional information is tailored to each choice.
7. Firsthand experiences	This section contains stories from parents who chose comfort care, surgery or ending the pregnancy, in which they describe their personal experiences. Five stories are provided for each of the three choices, reflecting a variety of different outcomes. Surgery stories include examples where the child had no serious medical complications growing up, examples where the child does have complications, and examples where the child did not survive postsurgery.
8. Questions you can ask your doctor	This is a list of possible questions parents may wish to ask care providers. Parents can checkmark the questions they wish to take with them to their doctor, and the tool will email them just these questions. They can then either print or access their questions digitally while in their appointment.