Table 1.
Demographic and clinical characteristics of the 19,717 youth-onset diabetes cases in the SEARCH for Diabetes in Youth mortality surveillance study, overall and by diabetes type, incident years 2002–2015
| Diabetes type | |||||
|---|---|---|---|---|---|
| Total | Type 1 | Type 2 | Secondary | Other/unknown‡ | |
| N | 19,717 | 14,721 | 4,141 | 551 | 304 |
| Age at diabetes dx, years, mean (SD) | 11.1 (4.6) | 10.0 (4.5) | 14.8 (2.8) | 13.4 (4.1) | 13.3 (4.2) |
| Age at diabetes dx, years, n (%) | |||||
| 0–4 | 2,521 (12.8) | 2,472 (16.8) | 7 (0.2) | 29 (5.3) | 13 (4.3) |
| 5–9 | 4,925 (25.0) | 4,635 (31.5) | 186 (4.5) | 53 (9.6) | 51 (16.9) |
| 10–14 | 7,725 (39.2) | 5,449 (37.0) | 1,905 (46.0) | 255 (46.3) | 116 (38.4) |
| 15–19 | 4,543 (23.0) | 2,164 (14.7) | 2,043 (49.3) | 214 (38.8) | 122 (40.4) |
| Sex, n (%) | |||||
| Female | 9,935 (50.4) | 6,918 (47.0) | 2,536 (61.2) | 310 (56.3) | 171 (56.6) |
| Male | 9,780 (49.6) | 7,803 (53.0) | 1,605 (38.8) | 241 (43.7) | 131 (43.4) |
| Race/Ethnicity, n (%) | |||||
| Non-Hispanic White | 11,177 (56.7) | 9,995 (67.9) | 752 (18.2) | 312 (56.6) | 118 (38.8) |
| Non-Hispanic Black | 3,576 (18.1) | 1,841 (12.5) | 1,556 (37.6) | 110 (20.0) | 69 (22.7) |
| Hispanic | 3,498 (17.7) | 2,137 (14.5) | 1,181 (28.5) | 99 (18.0) | 81 (26.6) |
| Other/unknown* | 1,466 (7.4) | 748 (5.1) | 652 (15.7) | 30 (5.4) | 36 (11.8) |
| Year of diagnosis, n (%) | |||||
| 2002–2005 | 4,961 (25.2) | 3,842 (26.1) | 905 (21.9) | 147 (26.7) | 67 (22.0) |
| 2006–2010 | 7,105 (36.0) | 5,299 (36.0) | 1,464 (35.4) | 225 (40.8) | 117 (38.5) |
| 2011–2015 | 7,651 (38.8) | 5,580 (37.9) | 1,772 (42.8) | 179 (32.5) | 120 (39.5) |
| Follow-up time from dx, years,† median (minimum–maximum) | 8.5 (0–16) | 8.7 (0–16) | 7.8 (0–16) | 7.9 (0–16) | 8.2 (0–15.9) |
| Age at death/censor, years, mean (SD) | 19.7 (5.9) | 18.7 (5.9) | 23.0 (4.7) | 21.5 (5.7) | 21.8 (5.8) |
| Age group at death/censor, years, n (%) | |||||
| <15 | 4,222 (21.4) | 3,971 (27.0) | 152 (3.7) | 63 (11.4) | 36 (11.9) |
| 15–19 | 5,939 (30.1) | 4,693 (31.9) | 1,018 (24.6) | 149 (27.0) | 79 (26.2) |
| 20–24 | 5,607 (28.4) | 3,748 (25.5) | 1,575 (38.0) | 182 (33.0) | 102 (33.8) |
| 25–29 | 3,183 (16.1) | 1,942 (13.2) | 1,060 (25.6) | 122 (22.1) | 59 (19.5) |
| 30–34 | 762 (3.9) | 366 (2.5) | 335 (8.1) | 35 (6.4) | 26 (8.6) |
| PY of follow-up | 170,148 | 129,083 | 34,046 | 4,457 | 2,562 |
dx, diagnosis.
*
Other/unknown race/ethnicity (n = 1,466) is comprised of Asian/Pacific Islanders (n = 618), Native Americans (n = 353), non-Hispanic/other races (n = 226), and unknown race/ethnicity (n = 269).
†
Follow-up time is from diabetes diagnosis to death or censoring on 31 December 2017 (the end date for the NDI search).
‡
Among the other/unknown diabetes type group, 76 (25.0%) had monogenic diabetes, 4 (1.3%) had hybrid diabetes type, and 224 (73.7%) had unknown diabetes type or their type was missing from the medical record.