Table 1.
Birth year and unique Krabbe patients in PHIS; patient demographics.
| Birth Year | N Patients | N Receiving HSCT | % with HSCT codes |
|---|---|---|---|
| 2020 | 5 | 0 | 0% |
| 2019 | 13 | 4 | 31% |
| 2018 | 18 | 6 | 33% |
| 2017 | 13 | 1 | 8% |
| 2016 | 17 | 5 | 29% |
| 2015 | 14 | 3 | 21% |
| 2014 | 12 | 3 | 25% |
| 2013 | 5 | 0 | 0% |
| 2012 | 1 | 1 | 100% |
| * Other Demographics based on first visit | |||
|---|---|---|---|
| Gender | N Patients | N Receiving HSCT | % with HSCT codes |
| Male | 53 | 15 | 28% |
| Female | 45 | 8 | 18% |
| Race/Ethnicity Grouping | |||
| White Non-hispanic | 45 | 12 | 27% |
| Other | 18 | 3 | 17% |
| White Hispanic | 16 | 3 | 19% |
| Missing | 9 | 3 | 33% |
| Black | 7 | 2 | 29% |
| Asian | 3 | 0 | 0% |
| Primary Payer Grouping | |||
| Government | 46 | 12 | 26% |
| Other | 13 | 1 | 8% |
| Private | 35 | 10 | 29% |
| Self Pay | 4 | 0 | 0% |
| First visit age in years | |||
| 0 | 72 | 17 | 24% |
| 1 | 12 | 1 | 8% |
| 2 | 7 | 3 | 43% |
| 3 | 7 | 2 | 29% |