Table 4.
Demographics of the patient/family state of care survey.
| PFSoC (n=424) n2 (%) | PFSoC Had a telehealth visit n3 | CFFPR 4 (n=32,095) n (%) | Comparison of PFSoC to CFFPR (p-value) | |
|---|---|---|---|---|
| Geographic distribution (n=340)1 | ||||
| Midwest | 68 (20.0%) | 52 | 8,413 (26.2%) | 0.01 |
| Northeast | 70 (20.6%) | 62 | 6,598 (20.6%) | |
| Southeast | 75 (22.1%) | 65 | 8,011 (25.0%) | |
| Southwest | 33 (9.7%) | 31 | 3,209 (10.0%) | |
| West | 94 (27.6%) | 73 | 5,864 (18.3%) | <.001 |
| Age (n=342)1 | ||||
| Less than 2 years | 16 (4.7%) | 15 | 1,142 (3.6%) | |
| 2-5 years | 30 (8.8%) | 26 | 3,164 (9.9%) | |
| 6-10 years | 47 (13.7%) | 35 | 4,166 (13.0%) | |
| 11-17 years | 55 (16.1%) | 45 | 5,837 (18.2%) | |
| 18-24 years | 31 (9.1%) | 27 | 5,346 (16.7%) | <.001 |
| 25-34 years | 54 (15.8%) | 45 | 5,892 (18.4%) | |
| 35-44 years | 37 (10.9%) | 32 | 3,453 (10.8%) | |
| 45+ years | 72 (21.1%) | 59 | 3,095 (9.6%) | <.001 |
| Gender (% Female) (n=334)1 | 196 (58.7%) | 164 | 15,486 (48.3%) | <.001 |
| Race / ethnicity (n=347)1 | ||||
| White | 307 (88.5%) | 261 | 27,354 (85.2%) | |
| Hispanic/Latinx | 22 (6.3%) | 12 | 3,049 (9.5%) | |
| Prefer not to answer | 9 (2.6%) | 8 | N/A | |
| African-American/Black | 8 (2.3%) | 7 | 1,102 (3.4%) | |
| Other | 5 (1.4%) | 5 | 590 (1.8%) | |
| Insurance type (n=347)1 | ||||
| Private health insurance policy | 247 (71.4%) | 212 | 18,838 (58.7%) | <.001 |
| Medicaid/state programs | 82 (23.7%) | 66 | 13,318 (41.5%) | <.001 |
| Medicare | 46 (13.3%) | 38 | 3,285 (10.2%) | |
| Other | 12 (3.5%) | 10 | 491 (1.5%) | <.001 |
| TriCare / other military health plan | 10 (2.9%) | 10 | 768 (2.4%) | |
| Prefer not to answer | 4 (1.2%) | 3 | N/A | |
| No insurance | 1 (0.3%) | 1 | 275 (0.9%) | |
| Taking a CFTR-modulator (% Yes) (n=347)1 | 248 (71.5%) | 205 | 20,897 (66.0%) | 0.032 |
| Missing data | - | - | 438 |
Within each demographic variable, the rows sum to 100% of the population with available data.
Demographic survey responses were not required fields. Some respondents chose not to answer these questions and therefore, demographic categories do not always add up the total number of survey responses due to missing data. Data specifically refers to the characteristics of the PwCF regardless of whether the respondent was an adult with CF or a parent of a child with CF.
The number of patients by each demographic variable that responded to the PFSoC question that they had experienced a telehealth visit.
The CFFPR sample includes all active patients (n=32,095) that had an annual case report form completed in 2020.