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. 2021 Dec 18;20:41–46. doi: 10.1016/j.jcf.2021.09.005

Table 2.

Patient perspectives on the changes in CF care that have occurred since the coronavirus/COVID-19 pandemic.

What would you/your child like to see continued in the future? (n=288) What would you/your child like to see changed in the future? (n=288)
Care delivery model 174 61% 53 18%
Care delivered via telehealth 114 40% 22 8%
Care delivered via mix of telehealth and in-person clinic visits 40 14% 15 5%
Care delivered via in-person clinic visit 21 7% 14 5%
Criteria for appropriateness of telehealth visit 25 9% - -
Measurement and testing 27 10% 49 17%
Safety/infection prevention 33 12% 6 2%
Care logistics (e.g., convenience, frequency/time/efficiency of visit, healthcare facility) 32 11% 17 6%
Quality of care (e.g., communication, multi-disciplinary team, sharing information) 24 9% 27 9%
Insurance/co-pay 4 1% 5 2%
Technology for telehealth 2 1% 5 2%
Research/treatment development 1 0% 6 2%
Other (e.g., COVID-19, mental health, social connection) 17 6% 20 7%
None/not applicable 44 16% 90 31%