Table 1.
Characteristics of study participants who provided course-collected data and course completers who supplied feedback surveys. Please note that participants could select multiple MSa community rolesb.
| Characteristic | Course-collected data | Feedback survey | |||
| Gender, n (%) | 3492 (100) | 1412 (100) | |||
|
|
Male | 552 (15.81) | 227 (16.08) | ||
|
|
Female | 2940 (84.19) | 1185 (83.92) | ||
| Education level, n (%) | 2876 (100) | 1549 (100) | |||
|
|
No university education | 1169 (40.65) | 595 (38.41) | ||
|
|
University education | 1707 (59.35) | 954 (61.59) | ||
| MS community rolesc, n (%) | 3024 (100) | 1549 (100) | |||
|
|
Person with MS | 928 (30.69) | 437 (28.21) | ||
|
|
Family member or friend | 664 (21.96) | 382 (24.66) | ||
|
|
Carer | 352 (11.64) | 139 (8.97) | ||
|
|
Service provider | 360 (11.9) | 92 (5.94) | ||
|
|
Allied health | 815 (26.95) | 365 (23.56) | ||
|
|
General practitioner | 67 (2.22) | 41 (2.65) | ||
|
|
Neurologist | 62 (2.05) | 18 (1.16) | ||
|
|
Advocate | 67 (2.22) | 44 (2.84) | ||
|
|
Researcher | 123 (4.07) | 44 (2.84) | ||
|
|
Other or no MS community role | 374 (12.37) | 321 (20.72) | ||
| Country of residence, n (%) | 3509 (100) | 1417 (100) | |||
|
|
Australia | 2180 (62.13) | 907 (64.01) | ||
|
|
Canada | 100 (2.85) | 38 (2.68) | ||
|
|
United Kingdom | 255 (7.27) | 101 (7.13) | ||
|
|
Ireland | 133 (3.79) | 44 (3.11) | ||
|
|
New Zealand | 277 (7.89) | 127 (8.72) | ||
|
|
United States | 106 (3.02) | 35 (2.47) | ||
|
|
South Africa | 51 (1.45) | 27 (1.91) | ||
|
|
Other | 407 (11.6) | 138 (9.74) | ||
| Final section completed, n (%) | 3518 (100) | —d | |||
|
|
<Module 1 | 620 (17.62) | — | ||
|
|
Module 1 | 251 (7.13) | — | ||
|
|
Module 2 | 90 (2.59) | — | ||
|
|
Module 3 | 74 (2.1) | — | ||
|
|
Module 4 | 72 (2.05) | — | ||
|
|
Module 5 | 48 (1.36) | — | ||
|
|
Module 6 | 2363 (67.17) | — | ||
| Age (years), mean (SD) | 44.38 (13.34)e | 46.78 (13.10)f | |||
| Disease duration (years), median (SD) | 4 (10) | 5 (10)g | |||
aMS: multiple sclerosis.
bAmong people with multiple sclerosis, approximately half of the participants who provided course-collected data and those who provided feedback data had a disease duration of 4 years or less. Consequently, the distribution was highly skewed toward 0 years (diagnosis in 2019; Multimedia Appendix 1).
cMultiple selections possible.
dNot available.
eN=3292.
fN=1330.
gN=401.