Table 3.
Differences in quality indicators within the six priorities.
What Is Working Well | What Is Not Working So Well |
---|---|
Priority one: Care is accessible to everyone, everywhere | |
78% rated quality of care excellent to good | 60% reported receiving as much support as wanted before death. |
84% could access care as soon as they needed. | 50% felt they received enough help after their relative’s death |
76% rated relief of pain excellent to good | All indicators lower for non-cancer conditions |
70% for relief of symptoms other than pain and practical assistance. | All indicators lower for non-users of palliative care |
80% rated quality of EOL care excellent/good and reported they received enough help at time of death (definitely/ to some extent). | |
Priority Two: Care is person-centred | |
83% rated values respected always/most of the time | 58% felt they could discuss worries/fears as much as they wanted |
87% rated cultural background respected always/most of the time | 61% rated spiritual support as excellent/good |
82% rated spiritual beliefs respected always/most of the time | 64% rated emotional support as excellent/good |
69% reported that the services checked if they have EOL wishes documents | All indicators lower for non-cancer conditions |
78% felt their wishes were taken into account | All indicators lower for non-users of palliative care |
72% of patients felt included in care decisions (excellent/good) | |
80% of carers reported being involved in decision making at EOL as much as they wanted | |
Priority Three: Care is coordinated | |
75% found the referral process easy/very easy | 60% reported that services worked well with GP and external services |
87% thought staff worked well within each setting (definitely/to some extent) | 10% of ED admissions were planned or coordinated |
74% rated out of hours services as excellent/good | All indicators lower for non-cancer conditions |
Priority Four: Families and carers are supported | |
78% reported patients were involved in decisions about their EOL care as much as they wanted | 62% rated emotional support to family carer as excellent/good |
60% were provided information on their relative’s condition | |
47% of carers reported being able to talk about experience of illness and death to services | |
53% of carers were offered information on grief by palliative care services | |
42% of carers were contacted by palliative care services 3–6 weeks after death and only 16% six months after death of their relative | |
All indicators lower for non-cancer conditions | |
All indicators lower for non-users of palliative care | |
Priority Five: All staff are prepared to care | |
88% thought they were treated with respect/dignity always/most of the time | All indicators lower for non-cancer conditions |
89% thought they were treated with compassion/ kindness always/most of the time | |
90% rated staff as very competent/competent | |
78% said they could obtain information when needed always/most of the time | |
86% of carers reported being dealt with in a sensitive manner at death/end of life | |
Priority Six: The community is aware and able to care | |
96% reported they received informal support before death and 92% found this informal support very/quite helpful | Lower rates of helpfulness before and after death for non-users |
94% reported they received informal support after death and 87% found this informal support very/quite helpful |