Wishes for the Field of Palliative and End of Life Care in Pediatric Cardiology

“Build stronger, collaborative networks.”

“True multicenter research.”

“Advance recognition of the importance of this topic.”

“To create a more robust evidence base to guide care.”

Wishes for Patients and Families Cared For

“Comprehensive access to palliative care early in care.”

“Skillful care that alights with children and families, leading to less suffering and better lives, throughout the illness trajectory.”

“To experience less suffering, physical and psychological.”

“Access to quality research and interventions.”

Wishes for One’s Career

“Forge new connections that foster new projects.”

“Funding to test and implement interventions in multiple centers across the country.”

“Successful collaboration with both patients and colleagues to advance this field.”

“Advance psychosocial care in pediatric cardiology through funded research and program development.”