Table 5:

How should germline risk assessment be performed?^*

Consensus question	Yes	No
Can physicians (urologists/oncologist) with expertise in hereditary kidney cancer syndromes offerpre-test counseling in patients suspected of having hereditary kidney cancer?	92%	8%
Is a standardized video covering essential elements of counseling sufficient for pre-test counseling in individuals suspected of having hereditary kidney cancer?	59%	41%
Should germline testing in patients who did not have any pre-test counseling be performed?	0%	100%
If an individualizedpre-test counseling was not performed, but germline testing is pursed, testing should:
a) include a comprehensive cancer gene panel to avoid testing too narrowly	8%
b) include a kidney specific gene panel only to keep focused	92%
Is a telehealth/telegenetics visit with a licensed counselor sufficient for evaluation of individuals suspected of having hereditary kidney cancer?	93%	7%
Should individuals with variants of unknown significance (VUS) in genes that could explain a hereditary kidney cancer phenotype be treated as affected until more information if obtained?	56%	44%

^*Statements in bold represent those with reached consensus