Table 3.
Baseline characteristics of patients who viewed their individual patient-reported outcome (PRO) results and those who did not.
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Those who viewed their PRO results (N=115) | Those who did not view their PRO results (N=35) | P valuea | ||||||
| Sociodemographic characteristics | |||||||||
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Age at time of questionnaire (years), mean (SD) | 60.1 (13.6) | 61.4 (14.0) | .64 | |||||
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Sex, n (%) | .93 | |||||||
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Male | 83 (72.2) | 25 (71.4) |
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Female | 32 (27.8) | 10 (28.6) |
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Educational levelb, n (%) | .16 | |||||||
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Low | 4 (3.5) | 1 (2.9) |
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Medium | 51 (44.3) | 22 (62.9) |
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High | 60 (52.2) | 12 (34.3) |
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Partner (yes), n (%) | 14 (12.2) | 8 (22.9) | .12 | |||||
| Clinical characteristics | |||||||||
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Months since diagnosis, mean (SD) | 13.6 (3.3) | 15.0 (3.3) | .03 | |||||
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Cancer type, n (%) | .21 | |||||||
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Hodgkin lymphoma | 10 (8.7) | 7 (20) |
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NHL-HGc | 67 (58.3) | 16 (45.7) |
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NHL-LGd | 30 (26.1) | 8 (22.9) |
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CLLe | 8 (6.9) | 4 (11.4) |
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Treatment, n (%) | .63 | |||||||
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Active treatment received | 91 (79.1) | 29 (82.9) |
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Active surveillance | 24 (20.9) | 6 (17.1) |
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Number of self-reported comorbidities, mean (SD) | 1.1 (1.1) | 1.1 (1.2) | .94 | |||||
| Psychological characteristics | |||||||||
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Personality, mean (SD) | ||||||||
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Openness | 3.5 (0.6) | 3.4 (0.6) | .43 | ||||
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Conscientiousness | 3.8 (0.4) | 3.6 (0.5) | .01 | ||||
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Extraversion | 3.6 (0.6) | 3.5 (0.5) | .66 | ||||
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Agreeableness | 3.8 (0.4) | 3.7 (0.4) | .14 | ||||
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Neuroticism | 2.4 (0.6) | 2.4 (0.6) | .78 | ||||
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Coping strategies, mean (SD) | ||||||||
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Fighting spirit | 3.0 (0.4) | 3.0 (0.4) | .47 | ||||
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Anxious preoccupation | 2.3 (0.4) | 2.2 (0.4) | .07 | ||||
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Helplessness or hopelessness | 1.6 (0.4) | 1.6 (0.5) | .87 | ||||
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Fatalism | 2.1 (0.4) | 2.2 (0.3) | .02 | ||||
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Avoidance | 1.7 (0.7) | 1.6 (0.6) | .47 | ||||
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Psychological distress (yes), n (%) | 101 (87.8) | 32 (91.4) | .56 | |||||
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Self-monitoring and insight, mean (SD) | 3.1 (0.4) | 2.9 (0.4) | .01 | |||||
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Satisfaction with information provision, mean (SD) | 3.9 (0.8) | 3.9 (0.7) | .76 | |||||
aP reports comparisons according to analysis of variance and chi-square tests.
bEducational levels were defined as follows: low=none or primary school; medium=lower general secondary education or vocational training; or high=preuniversity education or high-level vocational training or university.
cNHL-HG: high-grade non-Hodgkin lymphoma.
dNHL-LG: low-grade non-Hodgkin lymphoma.
eCLL: chronic lymphocytic leukemia.