Table 2.
Domain | Measure | Time point | Who |
Demographics | Self-report itemsa,b
|
T1 only | ICc, FCd, and HCPe |
Technology use and proficiency | The Mobile Device Proficiency Questionnairea [27]b | T1 and T4 | IC and FC |
Usability | System Usability Scale [39] | T4 (with a subset only) | IC and FC |
User burden (technology) | User Burden Scalea [40]b | T4 (with a subset only) | IC and FC |
Self-efficacy | General Self-Efficacy Scalea [32]b | T1 and T4 | IC and FC |
Stress | Perceived Stress Scale [41]: 14-item scale of the degree to which situations in an individual’s life are appraised as stressful | T1 and T4 | IC and FC |
Caregiver stress or psychological impact of caregiving | Caregiver Self-Assessment Questionnaire [42]: 18-item scale to measure the psychological impact (including stress) of caregivers | T1 and T4 | IC |
Caregiver burden | Zarit Burden Interview [43]: 22-item scale to measure the level of burden experienced by caregivers of patients | T1 and T4 | IC |
aMeasures included as part of a paper-based questionnaire sent to participants in advance of the relevant interview.
bThese measures were included as part of a paper-based questionnaire sent to participants in advance of the relevant interview.
cIC: informal carer.
dFC: formal carer.
eHCP: health care professional.