Table 1.
Summary of the pediatric patient-reported experience measures.
| No. | PREM name | Year and country of origin |
Type (generic/ disease specific) |
Patient or proxy completion | Number of items | Number of domains | Domain descriptors |
|---|---|---|---|---|---|---|---|
| 1 | Child HCAHPS | 2015, United States (10) | Generic | Proxy | 62 | 5 | Communication with parent, Communication with child, Attention to safety and comfort, Hospital environment, Global ratings. |
| 2 | Children and Young People's Inpatient and Day Case Survey 2014 | 2014, United Kingdom (11) | Generic | Both | 74 | 10 | Presence of pain, Pain relief, Overall experience, Involvement in decisions, Communication on arrival, Communication about care and treatment, Communication before operation/procedure, Communication after operation/procedure, Discharge communication, Advice on post-discharge care. |
| 3 | Children's Revised Humane Care Scale (CRHCS) | 2019, Finland (12) | Generic | Both | 41 | 6 | Professional practice, Information and participation in own care, Cognition of physical needs, Human resources, Pain and apprehension management, Interdisciplinary collaboration. |
| 4 | Clinician and Group Consumer Assessment of Healthcare Providers and Systems (CG-CAHPS) | 2007, United States (13) | Generic | Proxy | 33 | N/A | N/A |
| 5 | Consultation and Relational Empathy measure (CARE) | 2004, United Kingdom (Scotland) (14) | Generic | Both | 10 | 4 | Not specified. |
| 6 | Consumer Assessment of Health Plan Study (CAHPS) 2.0 Child Core Questionnaire | 2014, United States (15) | Generic | Proxy | 7 | 5 | Courtesy and respect of office staff, Helpfulness of office staff, Providers' communication skills with parents, Respect shown to parents by providers, Providers' communication skills with children. |
| 7 | Consumer Assessment of Health Plans Survey (CAHPS) | 2002, United States (16) | Generic | Proxy | 18 | 9 | Getting care quickly, Doctor's communication; Health plan customer service, Getting prescription medicines, Getting specialized services, Family centred care-shared decision making, Family centred care-getting needed information, Family centred care-personal doctor. |
| 8 | Consumer Assessment of the Healthcare Providers and Systems (CAHPS) | 2012, United States (17) | Generic | Proxy | 29 | 9 | Care from nurses, Care from doctors, The hospital environment, Experiences in this hospital, Post-discharge overall rating, Understanding care post-discharge, About patient. |
| 9 | Disease-specific patient satisfaction questionnaire | 2014, Germany (18) | Disease specific (IBS) | Patient | 32 | N/A | N/A |
| 10 | Epilepsy 12 | 2002, United Kingdom (19) | Disease specific (epilepsy) | Both | 18 | N/A | N/A |
| 11 | EMPATHIC-30 | 2011, Netherlands (20) | Generic (ICU) | Proxy | 30 | 5 | Information, Care and treatment, Organization and coordination of care, Parents and family engagement, Team care (pediatrician and other clinicians involved in the care of the children), Overall score. |
| 12 | Evaluation of the Quality of Diabetes Care' (PEQ-D) | 2002, Netherlands (21) | Disease specific (diabetes) | Patient | 14 | N/A | N/A |
| 13 | Experience of Service Questionnaire (ESQ) | 2002, United Kingdom (22) | Disease specific (mental health) | Both | 12 | N/A | N/A |
| 14 | Family-Provider Relationships Instrument-NICU (FAMPRO-NICU) | 2001, United States (23) | Generic (NICU) | Proxy | 65 | 3 | Belief-desire, Feelings, Intentions. |
| 15 | FCCS (Family Centered Care Survey) | 2006, Canada (24) | Generic | Proxy? | 20 | N/A | N/A |
| 16 | GYV (Give Youth a Voice) | 2008, Canada (25) | Generic | Patient | 56 | 4 | Supportive and respectful relationships, Information sharing and communication, Support of independence, Teen centered services. Note: adapted from MPOC. |
| 17 | Inpatient Survey (IS) | 2013, United Kingdom (26) | Generic | Patient | 86 | N/A | N/A |
| 18 | McLean Hospital's Perception of Care survey | 2002, United States (27) | Generic (inpatient psychiatric care) | Both | 20 | 4 | Interpersonal aspects of care, Continuity/coordination of care, Communication/information received from treatment providers, Global evaluation of care. |
| 19 | MPOC-20, MPOC-32, MPOC-56 | 1996, Canada (28) | Generic | Proxy | 20, 32, 56 | 5 | Enabling and partnership, providing general information, Providing specific information about the child, Coordinated and comprehensive care, Respectful and supportive care. |
| 20 | Mind the Gap | 2007, United Kingdom (29) | Generic | Both | 22 | 3 | The environment, Care processes, Healthcare provider characteristics. |
| 21 | Neonatal Instrument of Parent Satisfaction (NIPS) | 1996, Canada (30) | Generic (NICU) | Proxy | 27 | N/A | N/A |
| 22 | NRC Health Patient Survey | 2020, United States (31) | Generic | Proxy | 20 | N/A | N/A |
| 23 | P-MISS (Medical Interview Satisfaction Scale) | 1986, United States (32) | Generic | Proxy | 23 | 3 | Parent communication and child communication, Parent communication and adherence intent, Distress relief and adherence |
| 24 | Parent's Perceptions of Primary Care (P3C) | 2001, United States (33) | Generic | Proxy | 23 | 6 | Continuity of care, Accessibility of care, Contextual knowledge of physicians, Communication skills of physicians, Comprehensiveness of care, Coordination of care. |
| 25 | Pediatric Family Satisfaction Questionnaire (PFSQ) | 2002, United States (34) | Generic | Proxy | 35 | 3 | Hospital services and accommodation, Nursing care, Medical care |
| 26 | Pediatric Family Satisfaction-ICU (pFS-ICU) | 2001, United States (35) | Generic (ICU) | Proxy | 24 | 5 | How did we treat your family member (the patient), Symptom management: how well the ICU staff assessed and treated your child's symptoms, How did we treat you? Information needs, Process of making decisions. |
| 27 | PedsQL - Healthcare Satisfaction Generic Module | 2005, United States (36) | Generic | Both | 26 | 6 | Information, Family inclusion, Communication, Technical skills, Emotional needs, Overall satisfaction. |
| 28 | Picker Inpatient Survey | 1990's, United States (37) | Generic | Proxy | 35 | 7 | Partnership, Overall care, Physical comfort, Information to parents, Confidence and trust, Continuity and transition, Coordination of care. |
| 29 | Press Ganey Inpatient Pediatric Survey | 1998, United States (38) | Generic | Proxy | 38 | 8 | Admission, Nursing care, Tests and treatments; Family and visitors, Child's physician, Discharge, Personal issues, Overall assessment. |
| 30 | Press Ganey Medical Practice Survey | United States (39) | Generic | Proxy | 29 | 6 | Access to care, Visit processes, Nursing, Care provider, Personal issues, Overall assessment. |
| 31 | Press Ganey Patient Satisfaction Survey | United States (40) | Generic | Patient | Not provided | 4 | Inpatient overall, ED overall, Inpatient speed of admission, ED wait times to treatment |
| 32 | Press Ganey Physician Specialties Survey | United States (41) | Generic | Proxy | 39 | N/A | N/A |
| 33 | Press Ganey Satisfaction Survey (unique to each study) | United States (42) | Generic | Proxy | Varies | Varies | Varies |
| 34 | Swedish Pyramid Questionnaire (Quality of Patient Care Questionnaire - Parents Version)/ Swedish parent satisfaction questionnaire | 2001, Sweden (43) | Generic | Proxy | 63 | 8 | Information on illness, Information on routines, Accessibility, Medical treatment, Care processes, Staff attitudes, Parent participation, Staff work environment. |
| 35 | The Picker Institute's Neonatal Intensive Care Unit Family Satisfaction survey | 2014, United States (44) | Generic (NICU) | Proxy | 80 | 8 | Information and education to parents, Environment and visitation policies, Family and infant support by the NICU, Confidence and trust in the NICU, Continuity and transition, Family participation in care, Overall impressions, Coordination of care. |
| 36 | The Children's Hospital Boston Inpatient Experience Survey | 2013, United States (45) | Generic | Proxy | 62 | 8 | Care from nurses, Care from doctors, Doctors/nurses/parents working together, Hospital experiences (procedures, pain management, comfort), Hospital environment, Child's medication, Arrival at and discharge from the hospital, Overall ratings. |
| 37 | The national cancer patient experience survey | 2010–2014, United Kingdom (46) | Disease Specific (cancer) | Patient | 79 (varied each year) | N/A | N/A |
| 38 | The patient-reported experience measure (PREM) for children in urgent and emergency care. | 2012, United Kingdom (47) | Generic (emergency care) | Both | 29 | N/A | N/A |
| 39 | Young Patient Survey | 2004, United Kingdom (48) | Generic | Both | 89 | 9 | Respect for patient preferences, Coordination of care, Information and education, Physical comfort, Emotional support, Involvement of family and friends, Continuity and transition, Overall quality of care, Confidentiality and privacy. |