Table 4.
Hopes: Codes, Definitions, Frequencies and Sample Content for the question/prompt - “What are you hoping for?” & “What else are you hoping for?”
| Code | Definition | Family Overall (n=100) | Parent (n=100) | Patient (n=28) | Sample Content |
|---|---|---|---|---|---|
| Cure | cancer free; disease will be gone; an end to being sick; complete recovery or remission; treatment gets rid of cancer; the patient will be healed | 83 (83%) | 78 (78%) | 7 (25%) | Cured, disease completely gone, cancer free, things will be okay, overcoming disease, sickness goes away, treatment is effective/works |
| Return to Normalcy | getting back to the patient’s and/or family’s typical state and previous life activities | 22 (22%) | 17 (17%) | 9 (32.1%) | Going back to school, playing sports again, getting back to a normal life, being a normal kid |
| Regain Health | A freedom from illness, cancer complications, and disability; the body getting better or healing | 26 (26%) | 23 (23%) | 3 (10.7%) | Free of complications, no long-term problems, active, no more hospital visits, never having to do treatment again, going home without cancer |
| Rapid recovery / return home | returning to a healthy state quickly; minimal time with complications associated with cancer or treatment; leaving the hospital shortly after transplant; returning to and reuniting as a family | 30 (30%) | 24 (24%) | 6 (21.4%) | Treatment going quickly, feeling better fast, full and complete healing, getting out of hospital, reuniting with family, getting treatment over with, going home |
| Few side effects / complications | the avoidance of symptoms including but not limited to pain, nausea, fever, or infections during the treatment process; feeling well throughout transplant; minimizing adverse reactions/complications | 36 (36%) | 32 (32%) | 5 (17.9%) | Not getting too sick, feeling good, not getting worse, few complications, pain free, not attached to machines, not intubated, no GVHD, successful engraftment |
| Easy transplant | Minimal complications; unremarkable hospital stay; gentle and successful transplant; keeping a regular routine and/or regular activities throughout transplant | 33 (33%) | 28 (28%) | 7 (25%) | Smooth transplant process, everything goes well, it is not too bad, uneventful time, hopes for art activities during transplant, wanting to be a part of routine to minimize change |
| Family wellbeing | Wanting the best for the family, financially providing for family, fortitude to withstand transplant as a family | 5 (5%) | 3 (3%) | 2 (7.1%) | Family being safe and healthy, staying on their feet, financial stability, hoping to get a VISA to work in the country, maintaining strength |