Table 2.
Parent (self-report) and child (parent-report) measures
| Name | Description | Retest Reliability | Time (minutes) |
|---|---|---|---|
| Parent (Self-report) | |||
| Demographics form | Includes questions about household composition, socio-economic status, family medical history including neurodevelopmental disorders | ~ ~ | 10–15 |
| Autism Family Experience Questionnaire (AFEQ) | 48-item questionnaire that assesses family quality of life, includes 4 domains: experience of being a parent; family life; child development and social relationships; child's feelings and behavior | 0.83 | 10 |
| Autism Parenting Stress Index (APSI) | 13 items grouped into 3 categories (core social disability, difficult-to-manage behavior, and physical issue) designed to measure aspects specific to families of children with an ASD diagnosis | 0.88 | 5 |
| Perceived Stress Scale (PSS) | 10-item instrument that measures degree to which situations in one’s life are appraised as stressful. Items query how unpredictable, uncontrollable, and overloaded respondents find their lives | 0.85 | 5 |
| State-Trait Anxiety Inventory (STAI) | 40-item instrument designed to assess levels of state anxiety and trait anxiety; state anxiety defined as a transient momentary emotional status that results from situational stress while trait anxiety represents a predisposition to react with anxiety in stressful situations | 0.69–0.89 | 5 |
| Child (parent-report) | |||
| Autism Spectrum Quotient- children’s version (AQ-Child) | 50-item parent-report questionnaire designed to measure autism trait severity (4–11 years old) | 0.85 | 10 |
| Child Behavior Checklist/6–18 (CBCL) | 113-item questionnaire addressing child’s competencies and problem behaviors, including internalizing and externalizing behaviors | 0.80–0.94 | 15–20 |
| Social Responsiveness Scale, second edition (SRS-2) | 65-item rating scale measuring deficits in social behavior associated with ASD, total score reflects social deficit severity with five treatment subscale scores (Social Awareness, Social Cognition, Social Communication, Social Motivation, Restricted Interests & Repetitive Behavior) | 0.88–0.95 | 10–15 |