Table 1.
Parents’/caregivers’ economic burden per year.
| Economic Burden Category/Financial Cost Components | Min. | Max. | Mean | SD | Median | IQR | |||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| RM | USD | RM | USD | RM | USD | RM | USD | RM | USD | RM | USD | ||
| Direct Healthcare Cost | Rehabilitation Services | 0.00 | 0.00 | 18,000.00 | 4287.60 | 2563.26 | 610.57 | 3495.66 | 832.67 | 1200.00 | 285.84 | 857.52 | 204.26 |
| Alternative Treatments | 0.00 | 0.00 | 18,000.00 | 4287.60 | 1519.52 | 361.95 | 2471.18 | 588.64 | 840.00 | 200.09 | 571.68 | 136.17 | |
| Medicine Costs | 0.00 | 0.00 | 6000.00 | 1429.20 | 871.67 | 207.63 | 1262.59 | 300.75 | 0.00 | 0.00 | 285.84 | 68.09 | |
| Purchase of Medical Aids | 0.00 | 0.00 | 31,300.00 | 7455.66 | 3925.80 | 935.13 | 4789.71 | 1140.91 | 2500.00 | 595.50 | 976.62 | 232.63 | |
| Diagnostic Tests | 0.00 | 0.00 | 15,000.00 | 3573.00 | 379.41 | 90.38 | 1888.84 | 449.92 | 0.00 | 0.00 | 0.00 | 0.00 | |
| Ward Entrance Fees/Surgery | 0.00 | 0.00 | 75,000.00 | 17,865.00 | 2050.81 | 488.50 | 10,573.97 | 2518.72 | 0.00 | 0.00 | 35.73 | 8.51 | |
| Consultation Fees | 0.00 | 0.00 | 4200.00 | 1000.44 | 97.59 | 23.25 | 584.84 | 139.31 | 0.00 | 0.00 | 0.00 | 0.00 | |
| Total | 0.00 | 0.00 | 167,500.00 | 39,898.50 | 11,408.05 | 2717.40 | 25,066.79 | 5970.91 | 4540.00 | 1081.43 | 2727.39 | 649.66 | |
| Direct Non-Healthcare Cost | Transportation Costs | 0.00 | 0.00 | 30,000.00 | 7146.00 | 4289.40 | 1021.74 | 4735.24 | 1127.93 | 3000.00 | 714.60 | 857.52 | 204.26 |
| Total | 0.00 | 0.00 | 30,000.00 | 7146.00 | 4289.40 | 1021.74 | 4735.24 | 1127.93 | 3000.00 | 714.60 | 857.52 | 204.26 | |
| Developmental Cost | Domestic Helper | 600.00 | 142.92 | 20,160.00 | 4802.11 | 6494.40 | 1546.97 | 4767.05 | 1135.51 | 4800.00 | 1143.36 | 1214.82 | 289.37 |
| Nursery | 0.00 | 0.00 | 18,000.00 | 4287.60 | 2737.89 | 652.17 | 3969.16 | 945.45 | 0.00 | 0.00 | 1143.36 | 272.35 | |
| Special Education | 0.00 | 0.00 | 12,000.00 | 2858.40 | 1560.00 | 371.59 | 2792.58 | 665.19 | 0.00 | 0.00 | 571.68 | 136.17 | |
| Dietary Supplements | 0.00 | 0.00 | 24,000.00 | 5716.80 | 6670.60 | 1588.94 | 4689.67 | 1117.08 | 6000.00 | 1429.20 | 1143.36 | 272.35 | |
| Daily Necessities | 600.00 | 142.92 | 24,000.00 | 5716.80 | 4240.47 | 1010.08 | 4010.13 | 955.21 | 2700.00 | 643.14 | 1014.73 | 241.71 | |
| Insurance | 50.00 | 11.91 | 8500.00 | 2024.70 | 1942.41 | 462.68 | 2122.19 | 505.51 | 1500.00 | 357.30 | 524.04 | 124.83 | |
| Others | 0.00 | 0.00 | 18,000.00 | 4287.60 | 2114.75 | 503.73 | 3272.81 | 779.58 | 1200.00 | 285.84 | 643.14 | 153.20 | |
| Total | 1250.00 | 297.75 | 124,660.00 | 29,694.01 | 25,760.52 | 6136.16 | 25,623.58 | 6103.54 | 16,200.00 | 3858.84 | 6255.13 | 1489.97 | |
| Indirect Cost | Parents and Child Productivity Loss | 3000.00 | 714.60 | 102,000.00 | 24,296.40 | 32,477.14 | 7736.05 | 22,888.34 | 5452.00 | 28,800.00 | 6860.16 | 7003.08 | 1668.13 |
| Total | 3000.00 | 714.60 | 102,000.00 | 24,296.40 | 32,477.14 | 7736.05 | 22,888.34 | 5452.00 | 28,800.00 | 6860.16 | 7003.08 | 1668.13 | |
| Overall Total Economic Burden/Year | 424,160.00 | 101,034.91 | 73,935.11 | 17,611.35 | 52,540.00 | 12,515.03 | |||||||
Min. = Minimum. Max. = Maximum. IQR = Interquartile range. RM = Ringgit Malaysia. USD = United States Dollar.