Table 3.
Country | Study design | Study population | Kmet score/100 (quant.) | Kmet score/100 (qual.) | Social outcomes investigated | Key findings | |
---|---|---|---|---|---|---|---|
Community participation studies | |||||||
Chen et al 75 |
China | Non‐blinded RCT comparing Clubhouse model with standard care | Adults with SMI | 75 |
Outcomes at 6 months. Primary: social functioning and self‐determination. |
Clubhouse group had greater improvement in social functioning and self‐determination. | |
Heatherington et al 76 | US | Non‐controlled pre‐post study evaluating a residential farm program | Adults with SMI | 86 | Outcomes at 6 and 36 months: clinical and personal recovery; community participation. | Improved community participation at 36 months. | |
Varga et al 77 | Hungary | Non‐blinded RCT comparing community social club with case management or TAU | Adults with SMI | 92 | Outcomes at 6 months: social functioning and social cognition. |
Community social club and case management groups had better social function than TAU. Community social club group also had better social cognition. |
|
Moxham et al 78 | Australia | Qualitative evaluation of Recovery Camp | Adults with SMI | 85 | Participants’ personal goals and whether met during the camp. | Goals: connectedness; developing healthy habits; challenging myself; personal recovery. Most goals reported as met. | |
Prince et al 79 | US | Qualitative exploration of Clubhouse model | Clubhouse members (adults with SMI) | 85 | Exploration of benefits of Clubhouse membership and most helpful features. |
Benefits: improved social skills, gaining confidence, social connection. Features: flexible, non‐judgmental culture; equality of members and staff; evening and weekend activities; skills acquisition; sharing experiences; outreach support. |
|
Rouse et al 80 |
Canada | Participatory qualitative evaluation of Clubhouse model | Clubhouse members (adults with SMI) and staff | 95 | Explored how Clubhouse structures and ethos facilitated members’ recovery. | Structures/ethos: mutual respect, promoting self‐efficacy and autonomy, opportunities for social connection, providing purpose. Recovery: building identity and self‐respect, acquiring skills, being part of an empowered community. | |
Saavedra et al 81 | UK | Qualitative evaluation of creative workshops in local art gallery | Adults with SMI, mental health staff, and workshop facilitator | 95 | Exploration of impact of workshop participation. | Main benefits: learning about artistic process; social connection; greater psychological well‐being; challenging institutional attitudes; breaking down barriers between service users and staff. | |
Whitley et al 82 | Canada | Qualitative evaluation of a participatory video project | Adults with SMI | 80 | Exploration of participants’ experiences of the project. | Project well received. Main benefits: skill acquisition; connectedness; meaningful focus; empowerment; personal growth. | |
Smidl et al 83 | US | Non‐controlled, mixed methods pre‐post evaluation of a therapeutic gardening project |
Adults with SMI and staff |
45 | 60 |
Outcomes at 3 months: motivation, social skills. Qualitative data from participants’ journals. |
Motivation ratings improved. Most participants and staff felt the project helped with social connection and skills. Qualitative: the project gave people a sense of purpose and pride. |
Family intervention studies | |||||||
Kumar et al 84 | India | Assessor‐blinded RCT comparing a brief psychoeducation programme with nonspecific control intervention | Key relatives of adults with SMI | 69 | Outcomes at completion of sessions. Primary: carer burden. | Intervention group experienced greater reduction in carer burden. | |
Martin‐Carrasco et al 85 | Spain and Portugal | Multicentre, assessor‐blinded RCT comparing psychoeducation intervention programme with TAU |
Primary family caregivers of adults with SMI |
96 | Outcomes at end of intervention (4 months) and 4 months later. Primary: subjective and objective carer burden. | Intervention group experienced reduced subjective carer burden at both follow‐ups. No difference between groups in objective carer burden. | |
Mirsepassi et al 86 | Iran | Implementation study of a psychoeducation service | Adults with SMI and their family members | 60 | Programme development, implementation and sustainability. | Implementation affected by: low referral rate; limited resources; poor literacy; excessive distance to travel to access service. | |
Perlick et al 87 | US | Assessor‐blinded RCT comparing carer‐only adaptation of family focused therapy with standard health education | Relatives of adults with SMI | 88 | Outcomes at end of intervention and 6 months later. Primary: carer burden. | Intervention group experienced greater improvement in carer burden at both follow‐ups. | |
Al‐HadiHasan et al 88 | Jordan | Qualitative process evaluation, nested within an RCT | Adults with SMI and their primary caregivers who received the family intervention | 85 | Impact of family psychoeducation intervention on recipients. | Carers reported improved health, well‐being and coping. Service users reported better motivation. Both groups experienced improved self‐confidence and social interaction. | |
Edge et al 89 | UK | Mixed methods, feasibility cohort study | African‐Caribbean adults with SMI, their relatives or “proxy” family | 65 | 65 | Feasibility of delivering a culturally appropriate family intervention to “proxy families” (peer supporters or volunteers if no family). |
Intervention highly acceptable. Most service users reported improved family relationships. Relatives’ communication with service users and health professionals improved. |
Higgins et al 90 | Ireland | Sequential mixed methods, single group, pre‐post pilot evaluation of EOLAS programmes |
Adults with SMI and their family members |
45 | 55 | All outcomes at programme completion. Service users and families: hope for the future and self‐advocacy. Family members: perceptions of available social support. | No significant changes in quantitative outcomes. Qualitative: most participants found hearing other members’ stories was helpful. Co‐facilitation by peer support workers viewed positively, but some clinician facilitators appeared to lack skills to enable peer support worker co‐facilitators to participate equally. |
Higgins et al 91 | Ireland | Sequential mixed methods, single group, pre‐post evaluation of EOLAS programmes |
Relatives of adults with SMI |
59 | 50 | All outcomes at programme completion: confidence in ability to cope and to access help for relative; self‐advocacy; hope for the future. | Participants experienced increased confidence and hope and were satisfied/very satisfied with the program. Qualitative: increased awareness of communication within the family; value of peer support. |
Lobban et al 92 and Lobban et al 93 | UK | Assessor‐blinded RCT comparing online psychoeducation + resource directory (RD) with RD alone; mixed methods evaluation and economic analysis |
Relatives and close friends of adults with SMI. Qualitative sample: intervention group only |
100 100 |
65 50 |
Outcomes at 12 and 24 weeks. Primary: carer well‐being and experience of support. Secondary: costs of intervention and health and social care; experiences of the intervention. | No differences between groups in carer well‐being and support. Intervention cost more than RD alone and delivered no better health outcomes. Qualitative: intervention positively received. Proactive support from the peer supporters particularly appreciated. |
Nguyen et al 94 | Vietnam | Non‐controlled, mixed methods, pre‐post evaluation of family intervention and cost analysis | Adults with SMI and their caregivers | 68 | 45 |
Outcomes at 1 year. Quantitative: service user functioning. Qualitative: intervention acceptability and feasibility. Cost analysis: service user and family income. |
High participation (98%) and acceptability. Service user functioning improved, and one quarter secured a paid job. Financial burden on family decreased. |
Peer‐led/supported intervention studies | |||||||
Agrest et al 95 | Chile | Qualitative evaluation of peer supported intervention promoting recovery | Adults with SMI | 80 | Feasibility and acceptability of the intervention. | Peer support workers well received and helped engagement with community resources. | |
Beavan et al 96 | Australia | Self‐report survey of Hearing Voices Network |
Adults with SMI who attended network meetings |
85 | 75 |
Cross‐sectional data only. Descriptive and free‐text responses. |
Positive benefits included reduced isolation, gaining social skills and improved self‐esteem. |
Easter et al 97 |
US | Non‐blinded RCT comparing facilitation of advance directive by a peer‐support worker or a clinician | Adults with SMI under the care of an ACT team | 69 |
Outcomes at 6 weeks. Primary: empowerment. Secondary: self‐esteem. |
Modest advantage of using peer support workers in terms of empowerment and attitudes toward treatment. | |
Mahlke et al 98 | Germany | Assessor‐blinded RCT comparing peer support + TAU with TAU alone |
Adults with SMI |
96 |
Outcomes at 6 months. Primary: self‐efficacy. |
Self‐efficacy greater for intervention group. | |
O'Connell et al 99 | US | Assessor‐blinded RCT comparing peer mentor + TAU with TAU alone | Adult inpatients with SMI, substance misuse and recurrent admissions | 85 |
Outcomes at 9 months. Secondary: social function and sense of community. |
Greater improvement in social function for intervention group. | |
Salzer et al 100 |
US | Non‐blinded RCT and qualitative evaluation of addition of peer support workers to community mental health services |
Adults with SMI |
69 | 60 |
Outcomes at 12 months: community participation, empowerment, therapeutic alliance. Qualitative: content of peer support. |
Peer support group had greater community participation days. |
Thomas et al 101 | US |
Sub‐analysis of intervention arm of RCT comparing peer support with TAU |
Adults with SMI receiving the peer support intervention | 89 | Outcomes at 6 and 12 months: therapeutic alliance, empowerment and satisfaction. | Therapeutic alliance between participants and peer workers was high and positively associated with empowerment and satisfaction. | |
Social skills intervention studies | |||||||
Favrod et al 102 | France | Non‐controlled pre‐post evaluation of Positive Emotions Program for Schizophrenia | Adults with schizophrenia and severe negative symptoms | 86 | Follow‐up assessment point not specified. Primary: social function. |
Social function improved. |
|
Hasson‐Ohayon et al 103 | Israel | Non‐blinded RCT comparing social cognition and interaction training (SCIT) vs. therapeutic alliance focused therapy (TAFT) vs. TAU | Adults with SMI under a psychiatric rehabilitation service | 75 | Outcomes at end of 6 month intervention and 3 months later. Primary: social function. | No difference between groups in social functioning. | |
Horan et al 104 | US |
Non‐blinded RCT comparing social cognitive skills training (SCST) delivered in vivo with SCST delivered in clinic or active control intervention |
Adults with SMI | 93 | Outcomes at 3 months. Primary: social cognition. Secondary: social functioning. |
SSCT groups both improved in social cognition. No between‐group differences in social functioning. |
|
Kayo et al 105 | Brazil | Assessor‐blinded RCT comparing social skills training with an active control intervention | Adults with treatment resistant schizophrenia receiving clozapine | 93 | Outcomes at 20 weeks and 6 months. Primary: negative symptoms. Secondary: social skills. | No between‐group differences in social skills or negative symptoms. |
RCT – randomized controlled trial, TAU – treatment‐as‐usual, SMI – severe mental illness, quant. – quantitative, qual. – qualitative