Table 2.
Adjusted Odds Ratios of Reduced Health‐Related Quality of Life by Disability Type Among Adults With Congenital Heart Defects: CH STRONG, 2016–2019
| Fair or poor | Fair or poor | Impaired* physical | Impaired † mental | |||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| General health | Social functioning | HRQOL | HRQOL | |||||||||
| Characteristic | n | % |
aOR ‡ (95% CI) |
n | % |
aOR ‡ (95% CI) |
n | % |
aOR ‡ (95% CI) |
n | % |
aOR ‡ (95% CI) |
| Total | 209 | 14.1 | 212 | 14.3 | 367 | 24.8 | 461 | 31.2 | ||||
| Disability type | ||||||||||||
| None | 59 | 6.5 | Ref | 34 | 3.7 | Ref | 101 | 11.1 | Ref | 150 | 16.5 | Ref |
| Any | 150 | 26.4 |
5.6 (3.9–7.9) |
178 | 31.3 |
11.4 (7.6–17.0) |
266 | 46.8 |
7.7 (5.7–10.2) |
311 | 54.8 |
7.0 (5.3–9.1) |
| Hearing | 25 | 31.6 |
9.1 (4.6–17.7) |
23 | 29.1 |
9.2 (4.5–18.7) |
43 | 54.4 |
10.2 (5.8–18.1) |
33 | 41.8 |
3.5 (2.1–6.0) |
| Vision | 26 | 33.3 |
6.6 (3.5–12.4) |
26 | 33.3 |
9.9 (5.1–19.5) |
40 | 51.3 |
7.5 (4.3–13.0) |
34 | 43.6 |
3.7 (2.2–6.2) |
| Cognition | 117 | 28.2 |
6.1 (4.2–8.9) |
142 | 34.2 |
13.8 (9.0–21.0) |
207 | 49.9 |
8.6 (6.3–11.7) |
247 | 59.5 |
8.2 (6.1–11.0) |
| Mobility | 70 | 45.8 |
12.6 (7.9–20.2) |
72 | 47.1 |
21.4 (12.8–35.9) |
127 | 83.0 |
38.8 (23.2–65.0) |
103 | 67.3 |
10.3 (6.8–15.6) |
| Self‐care | 39 | 40.6 |
13.2 (7.0–24.9) |
54 | 56.3 |
57.0 (26.2–123.9) |
76 | 79.2 |
36.7 (19.2–69.9) |
60 | 62.5 |
8.5 (5.1–14.2) |
| Living independently | 78 | 25.2 |
6.3 (4.1–9.8) |
118 | 38.2 |
19.9 (12.3–32.1) |
147 | 47.6 |
9.8 (6.7–14.3) |
170 | 55.0 |
7.8 (5.5–11.0) |
aOR indicates adjusted odds ratio; CH STRONG, Congenital Heart Survey to Recognize Outcomes, Needs, and Well‐Being; and HRQOL, health‐related quality of life.
Defined has having a Global Physical Health T‐score<47.4, representing half a standard deviation below the mean of the general population.
Defined has having a Global Mental Health T‐score<43.7, representing half a SD below the mean of the general population.
Adjusted for CHD severity, age, sex, maternal/race ethnicity, site, and noncardiac congenital anomalies.