Table 2.
Women’s organisational preferences and adoption of health behaviours after risk feedback
| Self-reported breast cancer risk | ||||||||||
|
All women N = 325 |
Low N = 60 |
Average N = 125 |
Moderate N = 80 |
High N = 60 |
||||||
| Risk result in letter, n acceptable (%)a | 251 | (77.2) | 53 | (88.3) | 104 | (83.2) | 61 | (76.3) | 33 | (55.0) |
| Need for consultation, n yes (%) | 99 | (30.5) | 2 | (3.3) | 24 | (19.2) | 28 | (35.0) | 45 | (75.0) |
| Preferred risk counsellor, n (%)b | ||||||||||
| General practitioner | 49 | (49.5) | 1 | (50.0) | 14 | (40.0) | 11 | (30.6) | 23 | (30.3) |
| Oncologist | 42 | (42.4) | 1 | (50.0) | 11 | (31.4) | 11 | (30.6) | 19 | (25.0) |
| Geneticist | 37 | (37.4) | – | – | 2 | (5.7) | 10 | (27.7) | 25 | (32.9) |
| Nurse | 21 | (21.2) | – | – | 8 | (22.9) | 4 | (11.1) | 9 | (11.8) |
| Radiologist | – | – | – | – | – | – | – | – | – | – |
| Radiographer | – | – | – | – | – | – | – | – | – | – |
| Use website, n yes (%) | 243 | (74.8) | 41 | (68.3) | 97 | (77.6) | 59 | (73.8) | 46 | (76.7) |
| Screening intent, n yes (%)c | 308 | (94.8) | 54 | (90.0) | 123 | (98.4) | 78 | (97.5) | 53 | (88.3) |
| Supplemental mammography intent, n yes (%)d | 47 | (22.9) | n/a | 16 | (12.8) | 31 | (38.8) | n/a | ||
| Preferred screening interval low risk | ||||||||||
| 3-year | 34 | (56.7) | ||||||||
| 4-year | 20 | (33.3) | ||||||||
| 5-year | 4 | (6.7) | ||||||||
| Don’t know | 2 | (3.3) | ||||||||
| Preferred screening interval high risk | ||||||||||
| 6-month | 5 | (8.3) | ||||||||
| 1-year | 34 | (56.7) | ||||||||
| 18-month | 16 | (26.6) | ||||||||
| 2-year | 3 | (5.0) | ||||||||
| 3-year | 1 | (1.7) | ||||||||
| Don’t know | 1 | (1.7) | ||||||||
|
All women N = 325 |
Low risk N = 60 |
Average risk N = 125 |
Moderate risk N = 80 |
High risk N = 60 |
||||||
| Increased breast self-exam, n yes (%) | 124 | (38.2) | 12 | (20.0) | 36 | (28.8) | 39 | (48.8) | 37 | (61.7) |
| Changed diet (%) | ||||||||||
| Yes | 77 | (23.7) | 7 | (11.7) | 20 | (16.0) | 23 | (28.7) | 27 | (45.0) |
| No | 69 | (21.2) | 10 | (16.7) | 37 | (29.6) | 12 | (15.0) | 10 | (16.7) |
| No, not required | 179 | (55.1) | 43 | (71.6) | 68 | (54.4) | 45 | (56.3) | 23 | (38.3) |
| Changed exercise habits, n (%) | ||||||||||
| Yes | 86 | (26.5) | 16 | (26.7) | 28 | (22.4) | 16 | (20.0) | 18 | (30.0) |
| No | 102 | (31.4) | 15 | (25.0) | 48 | (38.4) | 23 | (28.8) | 16 | (26.7) |
| No, not required | 137 | (42.1) | 29 | (48.3) | 49 | (39.2) | 41 | (51.2) | 26 | (43.3) |
| Changed alcohol intake, n (%) | ||||||||||
| Yes | 65 | (20.0) | 12 | (20.0) | 22 | (17.6) | 17 | (21.2) | 14 | (23.3) |
| No | 107 | (34.8) | 17 | (28.3) | 47 | (37.6) | 23 | (28.8) | 20 | (33.3) |
| No, not required | 153 | (47.2) | 31 | (51.7) | 56 | (44.8) | 40 | (50.0) | 26 | (43.4) |
| Started medication, n yes (%)e | 46 | (50.0) | n/a | n/a | 13 | (31.7) | 33 | (66.0) | ||
| Willing to consider medication, n yes (%)f | 16 | (33.3) | n/a | n/a | 13 | (33.3) | 3 | (33.3) | ||
| Tamoxifen preference, n (%) | ||||||||||
| Pill | 73 | (52.1) | n/a | n/a | 32 | (40.0) | 41 | (68.4) | ||
| Cream | 22 | (15.7) | n/a | n/a | 17 | (21.3) | 5 | (8.3) | ||
| No preference | 9 | (6.4) | n/a | n/a | 8 | (10.0) | 1 | (1.7) | ||
| Neither | 28 | (20.1) | n/a | n/a | 17 | (21.3) | 11 | (18.3) | ||
| Don’t know | 8 | (5.7) | n/a | n/a | 6 | (7.4) | 2 | (3.3) | ||
a High-risk women did not receive their risk result in a letter, but were asked about a hypothetical scenario; b Percentages based on the number of women who perceived a need for a consultation, women could mark multiple options; c Based on stratified interval displayed in Fig. 1; d Based on a 4-year screening interval for low-risk women, and a 3-year screening interval for average and moderate risk women, e Based on number of women who indicated that tamoxifen was discussed with them for the PROCAS study; f Based on number of women who were eligible for preventative medication but indicated that it was not discussed with them for the PROCAS study