Table 1.
Registry descriptive statistics
| Measure | Mean | SD | 5%ile | 95%ile | Frequency (%) |
|---|---|---|---|---|---|
| HD onset age | 44.68 | 12.70 | 23.96 | 65.00 | – |
| Age of first observation | 51.40 | 13.17 | 29.55 | 72.80 | – |
| Time from onset until first observation | 6.76 | 5.48 | 0.76 | 17.14 | – |
| Age of death or of last observation | 52.97 | 13.22 | 30.86 | 74.36 | – |
| Right censoring time after onset | 8.52 | 5.83 | 1.65 | 19.38 | – |
| Age at death (n = 826) | 58.73 | 13.52 | 37.38 | 80.78 | – |
| Time from onset until death (n = 826) | 13.35 | 6.27 | 4.47 | 24.07 | – |
| CAG expansion length | 44.58 | 4.72 | 40.00 | 53.00 | – |
| Male | – | – | – | – | 51.2 (n = 4108) |
| Death | – | – | – | – | 9.8 (n = 826) |
Abbreviations: %ile, percentile; HD, Huntington disease.