Table 2.

Respondents to Questionnaire in Priority-Setting Phase

Demographicsa	Total
Stakeholder group
CAB member	24
Industry representative	6b
Total	30
Disease-specific CABc	7
Cystic Fibrosis	7
Duchenne Muscular Dystrophy	6
Cystinosis	4
Hereditary Haemorrhagic Telangiectasia	7
Total	24
Number of CAB meetings attended
None (in the planning phase)	6
≥1	24
Total	30

^a27 of 30 respondents completed part 3 of the questionnaire (selection of metrics).

^bIndustry representative respondents all collaborated with the Cystic Fibrosis CAB.

^cSince all industry representative respondents worked with the Cystic Fibrosis CAB, their responses were excluded from stratification per disease area.

CAB, community advisory board.