Table I:
Demographic Characteristics
| Parent Gender (N=14) | n (%) |
| Male | 1 (7%) |
| Female | 13 (93%) |
| Age of Parent | |
| 25–34 | 2 (14%) |
| 35–44 | 8 (57%) |
| 45–54 | 4 (29%) |
| Employment Status | |
| Working full-time outside of the home | 3 (21%) |
| Working full-time from home | 2 (14%) |
| Working part-time outside of the home | 3 (21%) |
| Working part-time from home | 1 (7%) |
| Full-time caretaker | 4 (29%) |
| Full-time (from home and outside the home) | 1 (7%) |
| Highest Degree of Education | |
| High school degree or equivalent (e.g. GED) | |
| Some college, no degree | 2 (14%) |
| Associate or Bachelor’s degree | 6 (43%) |
| Master’s degree | 5 (36%) |
| Professional degree (PhD, MD) | 1 (7%) |
| Household Income | |
| Less than $30,000 | 2 (14%) |
| $30,000 to $49,999 | 1 (7%) |
| $50,000 – $99,999 | 6 (43%) |
| $100,000 – $149,999 | 2 (14%) |
| $150,000 – $199,000 | 1 (7%) |
| $200,000 – $249,000 | 2 (14%) |
| Ethnicity | |
| Caucasian | 8 (58%) |
| Hispanic/Latino | 3 (21%) |
| Asian | 2 (14%) |
| African American | 1 (7%) |
| Number of Affected Children | |
| 1 | 10 (71%) |
| 2 | 4 (29%) |
| Diagnostic Status of Child (ren) | |
| Undiagnosed | 8 (57%) |
| Diagnosis Confirmed | 5 (36%) |
| Candidate Diagnosis | 1 (7%) |
| Primary Symptom Type of Child(ren) (N=17) | n (%) |
| Neurologic | 13 (76%) |
| Musculoskeletal | 2 (12%) |
| Gastroenterology | 1 (6%) |
| Hematology | 1 (6%) |
| Pulmonology | 1 (6%) |
| Age of Affected Child (n=17) | |
| Median | 7.5 years old |
| Range | 3–17 years old |