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. 2022 Jan 11;24(1):e25792. doi: 10.2196/25792

Table 1.

Information collected during the study.

Attribute studied Question Response modality/data analysis Data presentation
Perceptions of the impact of cancer on QoLa

Impact of cancer on QoL Can you cite 3 words or expressions that you think best express the aspects of QoL that are impacted by your cancer?
  • Open question

  • Replies grouped by theme

  • Number and % of patients citing each theme

Discussion of QoL with HCPsb

Importance of discussing QoL Do you think that discussing QoL with HCPs is . . . (list)?
  • Checklist of 5 levels of importance

  • Single response only

  • Number and % of patients citing each importance level


Experience of discussing QoL On what occasion(s) did you discuss QoL with the HCP who looks after you?
  • Checklist including “Never”

  • Multiple responses possible

  • Number and % of patients citing each occasion

  • Number of different HCPs identified


Desire to discuss QoL You replied that you have never discussed QoL with an HCP. Would you have liked an opportunity to do so?
  • Yes/No/Don’t know

  • Number and % of patients replying yes


Satisfaction with discussions of QoL Were you satisfied with the way that QoL has been brought up by different HCPs?
  • Checklist

  • Single response only

  • Number and % of patients citing each response


Reasons for satisfaction or dissatisfaction What was the reason that you were satisfied or dissatisfied?
  • Open question

  • Replies grouped by theme

  • Number and % of patients citing each theme


Opportunity to express yourself Do you feel that you were able to express yourself about the impact of cancer or cancer treatments on your QoL?
  • Checklist of 5 response modalities

  • Single response only

  • Number and % of patients citing each response

HCPs involved in HRQoLc discussions

Types of HCP discussing QoL When you consult 1 of the following types of HCP, do you discuss QoL with them?
  • Checklist of different HCPs with 5 response modalities for each

  • Including “Never/ I don’t consult this HCP”

  • Single response only

  • Number and % of patients responding often, occasionally, or rarely for each HCP specialty


Who initiates the discussion? When you discuss QoL with your oncologist or radiotherapist, who usually initiates the conversation?
  • Checklist of 5 response modalities

  • Single response only

  • Number and % of patients citing each response


Importance of different HCPs Which HCPs do you think are the most important for talking about QoL?
  • Checklist of different HCPs

  • Multiple responses possible

  • Number and % of patients citing each type of HCP


Other contexts where QoL is discussed Have you ever discussed your QoL in another context (discussion group, therapeutic education program, etc)?
  • Checklist of 5 contexts

  • Single response only

  • Number and % of patients citing each context

Opportunities for discussing QoL

Occasions when QoL had been discussed On what occasion(s) did you discuss QoL with the HCP who looks after you?
  • Checklist

  • Multiple responses possible

  • Number and % of patients citing each occasion


Relative importance of different occasions for discussing QoL Which occasions do you think are particularly important for discussing QoL with HCPs?
  • Checklist of different HCPs with 5 response modalities for each

  • Single response only

  • Number and % of patients citing each occasion

Dimensions of QoL discussed

Subjects discussed When you discuss QoL, what are the subjects that you usually discuss?
  • Checklist

  • Multiple responses possible

  • Number and % of patients citing each subject

  • Number of different subjects identified


Relative importance of discussing different subjects How much importance do you attach to discussing the following subjects with an HCP?
  • 10 cm visual analog scale for each of the 9 subjects

  • Mean score with standard deviation

Measures for improving discussions of QoL

Ways to improve paying attention to QoL How could the medical team involved in your care pay more attention to your QoL?
  • Open question

  • Replies grouped by theme

  • Number of citations for each theme


Specific measures In your opinion, which are the 3 measures that would be most useful to improve discussions of your QoL?
  • Checklist of 11 measures

  • 3 responses possible

  • Number and % of patients citing each measure

aQoL: quality of life.

bHCP: health care professional.

cHRQoL: health-related quality of life.