Table 1.
Information collected during the study.
| Attribute studied | Question | Response modality/data analysis | Data presentation | |
| Perceptions of the impact of cancer on QoLa | ||||
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Impact of cancer on QoL | Can you cite 3 words or expressions that you think best express the aspects of QoL that are impacted by your cancer? |
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| Discussion of QoL with HCPsb | ||||
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Importance of discussing QoL | Do you think that discussing QoL with HCPs is . . . (list)? |
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Experience of discussing QoL | On what occasion(s) did you discuss QoL with the HCP who looks after you? |
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Desire to discuss QoL | You replied that you have never discussed QoL with an HCP. Would you have liked an opportunity to do so? |
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Satisfaction with discussions of QoL | Were you satisfied with the way that QoL has been brought up by different HCPs? |
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Reasons for satisfaction or dissatisfaction | What was the reason that you were satisfied or dissatisfied? |
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Opportunity to express yourself | Do you feel that you were able to express yourself about the impact of cancer or cancer treatments on your QoL? |
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| HCPs involved in HRQoLc discussions | ||||
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Types of HCP discussing QoL | When you consult 1 of the following types of HCP, do you discuss QoL with them? |
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Who initiates the discussion? | When you discuss QoL with your oncologist or radiotherapist, who usually initiates the conversation? |
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Importance of different HCPs | Which HCPs do you think are the most important for talking about QoL? |
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Other contexts where QoL is discussed | Have you ever discussed your QoL in another context (discussion group, therapeutic education program, etc)? |
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| Opportunities for discussing QoL | ||||
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Occasions when QoL had been discussed | On what occasion(s) did you discuss QoL with the HCP who looks after you? |
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Relative importance of different occasions for discussing QoL | Which occasions do you think are particularly important for discussing QoL with HCPs? |
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| Dimensions of QoL discussed | ||||
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Subjects discussed | When you discuss QoL, what are the subjects that you usually discuss? |
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Relative importance of discussing different subjects | How much importance do you attach to discussing the following subjects with an HCP? |
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| Measures for improving discussions of QoL | ||||
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Ways to improve paying attention to QoL | How could the medical team involved in your care pay more attention to your QoL? |
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Specific measures | In your opinion, which are the 3 measures that would be most useful to improve discussions of your QoL? |
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aQoL: quality of life.
bHCP: health care professional.
cHRQoL: health-related quality of life.