Table 3.
Deceased subjects
| Patient | Age Group at death (years) | Location | Cause | Home respiratory support at time of death | Selected diagnoses at time of death | Medications |
|---|---|---|---|---|---|---|
| 1 | 5-14 | PICU | Septic shock prior to admission (Withdrawal of care) | Trach collar (21%) | Cerebral palsy, HIE, seizures, CLD, OSA, and laryngotracheomalacia | Levetiracetam, baclofen, fluticasone, albuterol, ipratropium, glycopyrrolate, lansoprazole, erythromycin |
| 2 | <1 | Car | Arrest | NC oxygen | CLD | Chlorothiazide, spironolactone, ranitidine |
| 3 | 1-4 | Home with hospice | Shunt malfunction | NC oxygen | Hydrocephalus with shunt, CLD | Fluticasone, albuterol, glycopyrrolate, lansoprazole, erythromycin, levetiracetam |
| 4 | 5-14 | Inpatient floor | Head trauma (Withdrawal of care) | Room air | Chromosomal abnormality, ASD, VSD, pHTN with stenting of pulmonary vein, CLD | Fluticasone, montelukast, sildenafil, bosentan, clopidogrel, acetylsalicylic acid |
| 5 | 1-4 | Unknown | Unknown | Room air | pHTN, hydrocephalus with shunt, HSV encephalitis, seizure disorder, cortical blindness, CLD | Fluticasone, albuterol, erythromycin, levetiracetam, phenobarbital, ranitidine, valacyclovir |
| 6 | 1-4 | Home | Arrest | Ventilator | CLD | Fluticasone, albuterol, ipratropium, montelukast, chlorothiazide, spironolactone, lansoprazole |
| 7 | <1 | ED | Cardiac arrest (home) | NC oxygen | CLD | Ranitidine |
| 8 | 1-4 | Home with hospice | Multi-organ progressive disease (Withdrawal of care) | NC oxygen | HIE, hydrocephalus with shunt, TPN dependence, chronic pancreatitis, seizures, CLD, OSA | |
| 9 | 1-4 | ED | Respiratory failure/cardiac arrest (home) | Ventilator | CLD, Pierre-Robin sequence, severe trismus | Beclomethasone, levalbuterol, ranitidine |
| 10 | 1-4 | PICU | Hydrocephalus progression (Withdrawal of care) | NC oxygen | Hydrocephalus with shunt, seizure disorder, CLD | Beclomethasone, albuterol, chlorothiazide, levetiracetam, topiramate, ranitidine |
| 11 | 1-4 | Inpatient floor | Respiratory failure; multi-organ progressive disease (Withdrawal of care) | Ventilator | Diffuse cystic PVL & hydrocephalus s/p ventriculostomy, seizures, CLD, PDA, right atrial thrombus | Baclofen, diazepam, gabapentin, levetiracetam, phenobarbital, topiramate, fluticasone, levalbuterol |
| 12 | 1-4 | ED | Arrest (home) | Room air | CLD, G6PD with hyperbilirubinemia, seizure disorder | Fluticasone, albuterol, levetiracetam, phenobarbital, erythromycin, cyproheptadine, omeprazole |
| 13 | 1-4 | PICU | Trach dislodgement (Home) (Withdrawal of care) | Ventilator | Hydrocephalus, CLD, with trach/vent, pHTN, adrenal insufficiency | Budesonide, levalbuterol, sildenafil, spironolactone, chlorothiazide, azithromycin |