Table 3.
Findings from the Second Phase of the Cognitive Interviews.
| # | Statement | Comments |
|---|---|---|
| Appearance and format of the questionnaire | 0/30 | |
| Consider including some more phrases to statements more inclusive | ||
| 17 | I get support from my religious community | Should include, religious, or spiritual communities maybe we should be more inclusive, I get support from my religious community and believers of other religions and spiritual groups. UG-18-202 |
| 18 | My religious beliefs give me hope | Argument that this should not be just about religious beliefs but also spiritual and cultural to accommodate diversity. (6/30) It means to me that one has to rely on religious beliefs alone for hope, which is not true. May be change to spiritual beliefs. UG-24-2021 |
| 23 | I am not getting the support I need | Lack of clarity on what support is needed and whether all patients should get support and from who? (12/30) What support or support from who? You could expect support that you cannot get because even those you expect to give you support don’t have it. UG-23-2021 I see people give me what they can because I cannot force anybody to give me what I want even my own children. Ug-07-21 |
| Difficult conversations | ||
| 9 | Working through thoughts about the possibility of dying brought meaning to my life | Talking about the possibility of dying is a sensitive issue (3/30) It is difficult working through thoughts about the possibility of dying because God hide the secret of death from us, but it is a reality—UG-16-021 |
| 29 | Working through my own grief has brought meaning to my life | Grief is a difficult thing, but we must face it with courage (3/30) When you get problems, your life is taken back, you don’t progress. Having pity on yourself is not good. When you have a lot of pity for yourself, God does not like it. You should take everything as normal whether you have your needs or not, grief, accept and move. When you cannot move forward in what you are doing, it affects your life. It is not good. Support is needed for patients struggling with it. It is a good question. UG-30-2020 |
Figures in brackets refer to the number of interviews in which problem was identified out of total interviewed in second phase.