. 2021 Nov 23;30(3):2591–2604. doi: 10.1007/s00520-021-06663-2

Table 2.

Emblematic verbatims concerning demographic and socio-economic factors, disease-related factors and care system factors

Categories	Themes (number of quotes)	Selected verbatims
Demographic and socio-economic factors	Professional activity (3/17)	- Well, I don’t work anymore, so I have time to think and organize myself according to that (P7)
- I'm a bit tired of it but it doesn’t matter, I’m retired. We do it the next day and that’s it. (P16)
- When I’m working, I know that at breakfast it becomes a little ritual but as soon as I leave this work context, on holiday at the weekend and all that, I sometimes forget quite easily (P3)
Medical and social family environment (2/17)	- So my wife is a nurse, so I was following, I have my doctor at home, so I was follow his instructions (P3)
- My wife is a pharmacist. She’s used to distributing medicines and she doesn’t forget, if I tend to forget a bit. I have the right to a reminder (P15)
Access to treatment (2/17)	- The first time I went there was the price of medicines, I was a bit shocked because every month it’s about 1000 euros, I think it’s 1000 euros, I had to see the bill for the medicines… so it’s true that it’s not nothing. And we say to ourselves that we are in a beautiful country, a beautiful system or I’ve been taking these medicines for two, one and a half years, so it’s good that I can take them, treat myself without it costing me, a penny from my pocket, so there you go (P3)
Disease factors	Gravity (2/17)	- Unfortunately, we know that one cancer in two wins (P6)
- It’s too serious to do anything with it (P17)
- Oh, I can’t take that lightly. That’s still there now, it’s getting better. But I’d say that since 2015 I've had this, there hasn’t been five minutes in the day when I haven't thought about it (P17)
Care system factors	Patient’s trust in the oncologist (12/17)	- I avoid going on the Internet because there is so much, there is so much contradictory information that I don’t look at, I for me, I necessarily ask a medical professional (P2) - I trust them because I think they are people who know their job well. They do everything to help us (P12)
- If you don’t trust, you buy a gun and then put a bullet in your head, it’s no use (P6)
- I say that it is the person in front of you who is qualified to advise you better: if you trust him, you do what he tells you to do… (P7)
Quality of information given by the oncologist at the initiation of treatment (10/17)	Clear and appropriate information
- What’s good is that she first mentioned the fact that my body was suitable for chemotherapy according to the analyses (P1)
- And Doctor X she’s very good too, she explains things well, it’s important, I think (P13)
- Pff bah the leaflet uh, well fortunately doctor X had given me some side effects on another sheet, we have another sheet. It’s more succinct, but I still read the leaflet. (P11)
- He presented it to me as a better way of life, it’s more pleasant (P16)
- So I was given a sheet with all the side effects. So we went through them a little bit and then she told me that just because we had a sheet of paper with side effects on both sides didn’t mean we were going to get them. But they are obliged to tell us everything and that too (P11)
Incorrect information
- And the proof, it was supposed to be harmless for me and finally, the first treatment, the first week, it was rather a technical knockout so I didn’t find out more than that (P1)
- the surgeon told me on the last day when I left that normally there would be no treatment (P2)
Quality of care (7/17)	Satisfaction
- That’s why I stayed at the Nantes University Hospital, because I find a lot of benevolence and good care. They always listen to me, that’s it (P5)
- I think we are part of a team in these cases. There’s the doctor, and there’s the patient and these are not trivial illnesses, so we’re part of a team (P6)
- If I talk about a problem and they take care of it, if there is an answer, I’m fine. If there’s nothing, I say I’ll stop taking it because it hurts me too much. There, I see for my problems, they take care of it (P8)
- I am well accompanied by all the staff of the University Hospital. I would like to point this out. From the first day I came to the emergency room until today (P11)
Availability of care staff
- But knowing, having a phone number, having a name, it’s reassuring, you’re not alone. When you take oral chemo, well, you’re all alone at home. We take our little tablets and everything, and knowing that there’s someone there is important (P11)
- I was very touched, he told me if you have a problem at any time, never hesitate to call me (P14)
- My GP who opened the door for me, who said if you really have any questions, concerns, you call me (P2)

Categories

Themes (number of quotes)

Selected verbatims

Demographic and socio-economic factors

Professional activity (3/17)

- Well, I don’t work anymore, so I have time to think and organize myself according to that (P7)

- I'm a bit tired of it but it doesn’t matter,

I’m retired. We do it the next day and that’s it. (P16)

- When I’m working, I know that at breakfast it becomes a little

ritual but as soon as I leave this work context,

on holiday at the weekend and all that, I sometimes forget quite easily (P3)

Medical and social family environment (2/17)

- So my wife is a nurse, so I was following, I have my doctor

at home, so I was follow his instructions (P3)

- My wife is a pharmacist. She’s used to

distributing medicines and she doesn’t

forget, if I tend to forget a bit. I have the right to a reminder (P15)

Access to treatment (2/17)

- The first time I went there was the price of medicines,

I was a bit shocked because every month it’s

about 1000 euros, I think it’s 1000 euros,

I had to see the bill for the medicines… so it’s true

that it’s not nothing. And we say to ourselves that we are in a beautiful country,

a beautiful system or I’ve been taking these medicines for two,

one and a half years, so it’s good that I can take them, treat

myself without it costing me, a penny from my pocket, so there you go (P3)

Disease factors

Gravity (2/17)

- Unfortunately, we know that one cancer in two wins (P6)

- It’s too serious to do anything with it (P17)

- Oh, I can’t take that lightly. That’s still there now,

it’s getting better. But I’d say that since

2015 I've had this, there hasn’t been five minutes

in the day when I haven't thought about it (P17)

Care system factors

Patient’s trust in the oncologist (12/17)

- I avoid going on the Internet because there

is so much, there is so much contradictory information

that I don’t look at, I for me, I necessarily ask a medical professional (P2)

- I trust them because I think they are people who know their job well. They do everything to help us (P12)

- If you don’t trust, you buy a gun and

then put a bullet in your head, it’s no use (P6)

- I say that it is the person in front of you

who is qualified to advise you better: if you trust him, you

do what he tells you to do… (P7)

Quality of information given by the

oncologist at the initiation of treatment (10/17)

Clear and appropriate information

- What’s good is that she first mentioned the

fact that my body was suitable for chemotherapy

according to the analyses (P1)

- And Doctor X she’s very good too, she explains

things well, it’s important, I think (P13)

- Pff bah the leaflet uh, well fortunately doctor

X had given me some side effects on another sheet,

we have another sheet. It’s more succinct, but I still read the leaflet. (P11)

- He presented it to me as a better

way of life, it’s more pleasant (P16)

- So I was given a sheet with all the side effects.

So we went through them a little bit and then she told

me that just because we had a sheet of paper with side effects on both

sides didn’t mean we were going to get them. But they

are obliged to tell us everything and that too (P11)

Incorrect information

- And the proof, it was supposed to be harmless for

me and finally, the first treatment,

the first week, it was rather a technical knockout so I didn’t

find out more than that (P1)

- the surgeon told me on the last day when

I left that normally there would be no treatment (P2)

Quality of care (7/17)

Satisfaction

- That’s why I stayed at the Nantes University Hospital,

because I find a lot of benevolence and good care.

They always listen to me, that’s it (P5)

- I think we are part of a team in these cases.

There’s the doctor, and there’s the patient and these are not

trivial illnesses, so we’re part of a team (P6)

- If I talk about a problem and they take care of it,

if there is an answer, I’m fine. If there’s nothing,

I say I’ll stop taking it because it hurts me too much. There, I see for my problems, they take care of it (P8)

- I am well accompanied by all the staff

of the University Hospital. I would like to point this out.

From the first day I came to the emergency room until today (P11)

Availability of care staff

- But knowing, having a phone number, having a name, it’s reassuring,

you’re not alone. When you take oral chemo, well, you’re all alone at home.

We take our little tablets and everything,

and knowing that there’s someone there is important (P11)

- I was very touched, he told me if you have a problem

at any time, never hesitate to call me (P14)

- My GP who opened the door for me, who said if you

really have any questions, concerns, you call me (P2)