. 2021 Nov 23;30(3):2591–2604. doi: 10.1007/s00520-021-06663-2

Table 3.

Emblematic verbatims concerning treatment-related factors

Categories	Themes (number of quotes)	Selected verbatims
Treatment factors	Tolerance of traitment (14/17)	- I feel it’s weighing on my eyes and it’s a pain in the ass in the workplace because when I get to work it doesn’t look like I’m awake, although I am but it makes my face look a bit worse (P3)
- If you like, I’m so sore in both feet that I can’t do the activities I used to do because while I was still sick, I used to ride an electric bike (laughs) and walk, I used to do things to maintain my body. Now I’m reduced to the sofa and the remote control. And that’s starting to wear me out… (P8)
- I suffer from it as something a bit disabling. Compared to the expectations I have of living a life of my age without too many problems, but I think that these drugs, this particular drug, was creating a number of problems for me (P14)
- I started losing my hair and eyelashes. And that was dramatic. In fact, I didn’t recognize myself. That’s what I told the psychologist. It was shocking because what disturbed me the most was not recognizing myself because it made my eyes bulge and it completely depressed me. I said, but it's not possible, it’s not me (P17)
Simplicity of treatment (12/17)	*Autonomy*
- You do your treatment yourself. I already think that on a mental level it is better (P4)
*Comparison of intravenous chemotherapies*
- If it has the same effect as the infusion, then I prefer to swallow four tablets in the morning and evening (P2)
- Well, the advantage is that, if I tell you, it’s to be at home or to be in one’s environment. it’s still less restrictive to swallow tablets than if I had to come twice, three times a week (P2)
- The day before, before coming to the appointment, I explained to the person I was with, it’s crazy, it would be great if this thing could be made into a medicine to be swallowed, because with the medicine that we swallow compared to many other things in the medical system. It seems … It’s a simple and painless procedure (P1)
- A capsule that I used to combine with a glass of water, I don’t know, there’s more misery. There is more physical interaction that can lead to a feeling of pain (P1)
Freedom
- If I move, I can take the medicine pack with me (P1)
- Well, the fact that it’s under medication and not an injection. It’s more, it’s practical, you can travel with these drugs (P10)
- Today, in my everyday life, I don’t feel like I'm taking a treatment, I do sport if I feel like it. I go to parties with friends. I work completely, normally (P3)
Difficulties with treatment (7/17)	Fear of forgetting
- It’s more like forgetting it, but without doing it on purpose, that is to say that, little by little, as the three weeks go by, you feel that you’re coming back to yourself in normal mode. So, it’s more a case of forgetting, or at least I’m not a person who is used to taking medication. You really have to be assiduous because if it’s someone who’s absent-minded … it’s not going to work (P1)
Galenic
- When I saw the size at the beginning, I said to myself … then you really have to take the time to swallow. Because for the first time, I wanted to swallow everything in one go, one after the other, and then I had a bit of trouble getting through (P2)
- I say to myself, well, they’re quite big and it’s all very simple, in general, it follows a medical course, we’ve been through quite a lot and the apprehension of thinking if I swallow it wrong, well, it’s big and it’s stupid, but we’re still quite anxious about the slightest little thing and the fact that it’s big isn’t… (P1)
How to take
- Waiting 30 min can be a constraint (P2)

Categories

Themes (number of quotes)

Selected verbatims

Treatment factors

Tolerance of traitment (14/17)

- I feel it’s weighing on my eyes and it’s a pain in the ass in the workplace

because when I get to work it doesn’t look like I’m awake, although I

am but it makes my face look a bit worse (P3)

- If you like, I’m so sore in both feet that I can’t do the activities

I used to do because while I was still

sick, I used to ride an electric bike (laughs) and walk,

I used to do things to maintain my body. Now I’m reduced to the sofa

and the remote control. And that’s starting to wear me out… (P8)

- I suffer from it as something a bit disabling.

Compared to the expectations I have of living a life of

my age without too many problems, but I think that these drugs,

this particular drug, was creating a number of problems for me (P14)

- I started losing my hair and eyelashes. And that was dramatic.

In fact, I didn’t recognize myself.

That’s what I told the psychologist. It was shocking because what disturbed me

the most was not recognizing myself

because it made my eyes bulge and it completely depressed me.

I said, but it's not possible, it’s not me (P17)

Simplicity of treatment (12/17)

Autonomy

- You do your treatment yourself. I already think

that on a mental level it is better (P4)

Comparison of intravenous chemotherapies

- If it has the same effect as the infusion,

then I prefer to swallow four tablets

in the morning and evening (P2)

- Well, the advantage is that, if I tell you,

it’s to be at home or to be in one’s

environment. it’s still less restrictive to swallow tablets

than if I had to come twice, three times a week (P2)

- The day before, before coming to the appointment, I explained

to the person I was with, it’s crazy,

it would be great if this thing could be made into a medicine to be swallowed,

because with the medicine that we swallow compared to many other things in the medical system.

It seems … It’s a simple and painless procedure (P1)

- A capsule that I used to combine with a glass of water,

I don’t know, there’s more misery.

There is more physical interaction that can lead to a feeling of pain (P1)

Freedom

- If I move, I can take the

medicine pack with me (P1)

- Well, the fact that it’s under medication and

not an injection. It’s more, it’s practical, you can travel with

these drugs (P10)

- Today, in my everyday life, I don’t

feel like I'm taking a treatment, I do sport if I feel like it.

I go to parties with friends. I work completely, normally (P3)

Difficulties with treatment (7/17)

Fear of forgetting

- It’s more like forgetting it,

but without doing it on purpose, that is to

say that, little by little, as the three weeks go by, you

feel that you’re coming back to yourself in normal mode.

So, it’s more a case of forgetting, or at least I’m not a person who is used

to taking medication. You really have to be assiduous because

if it’s someone who’s absent-minded …

it’s not going to work (P1)

Galenic

- When I saw the size at the beginning, I said to myself …

then you really have to take the time to swallow.

Because for the first time, I wanted to swallow everything in one

go, one after the other, and then I had a bit

of trouble getting through (P2)

- I say to myself, well, they’re quite big and it’s

all very simple, in general, it follows a medical

course, we’ve been through quite a lot and the apprehension of

thinking if I swallow it wrong, well, it’s big and it’s stupid,

but we’re still quite anxious about the slightest little thing

and the fact that it’s big isn’t… (P1)

How to take

- Waiting 30 min can be a constraint (P2)